OK, went to my Endocrinologist today and was told I am no longer diabetic!!! Not kidding or fooling around!! I am now pre-diabetic!!! Wow, dx’ed type 1 in ICU, bs 672 and a1c of 13.2, aug./08 at 52 years old. A little over 3 years later I am no longer diabetic!!! The Dr. is going to enroll me in a study (veteran) to see what’s up with my beta cells and immune system!!! Imagine I never thought I only had a guess pass to Club !.LOL
What did he base this on? Did he test C-peptide to know that it’s increased? Am guessing that your insulin doses have gone down dramatically.
Rejoicing for anyone who gets to leave the D Club! Please keep us posted on the study.
Every time I get an A1C in the high 5’s, the computer generated lab report tells me that an A1C of say 5.6 means that I am “at reduced risk for diabetes” and that only an A1C of 6.5 or higher means "consistent with diabetes."
I don’t for a second think that means that I no longer have diabetes although the wording always tweaks a little bone in my head that very rarely gets tweaked.
In my head, that wording on the labwork is about as worthwhile as (for example a memory from my youth) the school nurse asking “Are you sure you have diabetes? You don’t look like you have diabetes.”
On what basis did he make that pronouncement? Were you in true DKA when you were diagnosed, or was it Hyperosmolar Coma? Were you tested for antibodies? Are you able to be off insulin for more than a day without any rise in BG, except after meals, and then it comes right back down again? Do you check for ketones? Maybe you were a Type 2 all along?
Your post brings up a lot of questions, and I am interested in knowing more details!
Please tell me It was a shot of BCG!
I too am interested in what the doctor is basing this on.
My C-pep came back normal!!! I still have to check bs and once in a great while I use insulin for corrections. The reason I am not diabetic is because I did have to treat everyday. I only used 5-6 units of Novolog in the last month!!! .
That is astounding!
DKA yes, antibody positive yes, I only use insulin for correction, I go a days, weeks without, yes bs comes down. They want to study me because I only tested positive for 1 GAD not all. I am negative for the others, but had been positive at dx. And I don’t take any diabetic meds. Believe me, I am blown away. The Dr. also said I am unknown Type ?
Be careful, the pharnas may try to lock you away!
Whatever is happening congratulations!!!
Well, that’s an interesting story! You are a case for the textbooks. Maybe you have some unusual gene that allows you to rapidly regenerate beta cells? It has been found that mice do, but humans don’t. Maybe you’re secretly a mouse masquerading as a human? 
Maybe your body has, in some way, tamed your immune system? I hope they put a lot of energy into studying you, because they might find out something that will eventually be of benefit to others!
Wow. One in a million!
"Wow, dx'ed type 1 in ICU, bs 672 and a1c of 13.2, aug./08 at 52 years old."
It looks rather more likely to me that you were never a type 1 in the first place. From the start you appear to have been been an insulin-using type 2.
"DKA yes, antibody positive yes, I only use insulin for correction, I go a days, weeks without, yes bs comes down. They want to study me because I only tested positive for 1 GAD not all. I am negative for the others, but had been positive at dx."
Were you officially told you were type 1 or did you presume you were because you used insulin? It sounds like your GAD tests were indicative rather than conclusive.
Nor are you now cured or pre-diabetic; you are now a well-controlled type 2 based on the information you have provided.
Congratulations on your improvement. Whatever the cause, it is something to celebrate :)
Cheers, Alan, T2, Australia
Everything in Moderation - Except laughter
Yeah, it’s uncommon but not unheard of. There are a few variants of Type 2 (for lack of a better classification) that have periodic complete beta cell failure but what happens is rather than dying the beta cells simply shut down. Consequently the person ends up with high BG and very large ketones and going into DKA if it isn’t addressed. If it’s treated with insulin the beta cells recover over a 6 week or so period once your levels are controlled. There is a hospital in Texas that does a lot of work in that area. The most common instance of this is “Flatbush Syndrome”.
I know a couple of people with this. The interesting thing is that they don’t really know why it happens but have a look for ketosis prone diabetes.
The only thing that doesn’t fit the picture of ketosis-prone Type 2 for Keith is that he said he DID have at least one positive GAD antibody (not sure if that means there are more than one GAD antibody, or if he had other antibodies). And I don’t know how high the titer was. Also, I don’t know if he has black blood behind him, but KPT2 is almost universally found among blacks, and occasionally in Asians and Hispanics and Native Americans, the latter 2 because they have Asian deep ancestry. Just because he ALMOST fits the picture is not proof that he actually IS that type, and I do hope his doc is proactive about getting him studied – it would be a shame to just stick him in a box if he DOES have something unusual going on that could give clues to possible cures.
Hey Alan, I remember you were the first to say welcome at ADA website right after I was dx’ed, before I found here! My insulin use only went down about a year ago. First Lantus was causing lows! before that it was 30 units every morning. Novolog was used at about 2 units for every 45 grams carbs, always. I was type 1!!! I was dx’ed in a Veterans Hospital. By the way it was ADA site and your help that taught me how to figure baseline. Haven’t been there in quite awhile, check you’ll find me there. Dx’ed aug./08 and joined about that time. The post I can remember was about having a bologna sandwich causing my bs to get high and I would figure thid diabetes stuff out.
Type 2 no type unknown is what Dr. said!!!
That is type 1b idiopathic diabetes. Type 1b never test positive for any GAD! Also called ketoacidosis prone Type 2. My insulin didn’t start dropping till after about 2 years!
What do you mean?? Wait there is a knock at my door… HELP I only have a seconds there are these guys in white coats trying to catch me!!! Please tell some bodYYYYY… Ahhhhhhh
ROFLMAO
Type 1 in honeymoon phase? I’m told that for T1’s diagnosed as adults the honeymoon phase can be a year or two or three after diagnosis.
They made real sure I knew that the honeymoon phase did not mean I was cured.
I could be wrong, but do antibodies automatically mean Type 1? I thought I read somewhere that a certain percentage of the population has antibodies but never actually develops Type 1. So, is it possible that you developed Type 2 and just happened to have antibodies?
I also thought I read somewhere that even us Type 1s are always regenerating beta cells and that our immune systems just continually kill them off. So, maybe your immune system somehow reverted back to its normal state?
In either case, congratulations for being cured (or well-controlled without insulin)! That is never a bad thing!