"Diabulimia"

Does anyone here struggle with this type of eating disorder? I used to have it severely, binging on massive amounts of sugary foods and not covering it with insulin. I thought I was cured for about five years, but recently have been struggling again. I have type one diabetes and have been overeating, especially at night, leading to high blood sugars ALL night :unamused:. My body has already been through SO much due to this combination of illnesses. I need accountability and a kick in the butt.

Do you know about the organization We Are Diabetes? Its purpose is to provide support for T1s struggling with eating disorders. http://www.wearediabetes.org/

Iā€™d been recovered from an eating disorder for several years before my T1 diagnosis and the way I have to think about food now puts me so close to that line again it can be very scary. Glad youā€™re reaching out for some help.

1 Like

Mariposa,

Iā€™ve been right where you are my dear. Until you really and truly face your ED, itā€™s going to keep showing up again and again in your life. Please let me help you. I work with individuals who want to recover from ED-DMT1 and I keep the work between us highly confidential. Please visit www.wearediabetes.org or email me at asha.brown@wearediabetes.org. I donā€™t have a lot of time to visit the Tudiabetes forums with the amount of individuals I work with at WAD, so I may not be able to engage much on this thread, but I had to make sure I extended my love and support to you- you are NOT alone and you CAN beat this!

6 Likes

Thanks for the link! You know, a while ago I Googled eating disorders and diabetes and that did not come up. I will check it out for sure.

1 Like

Iā€™ve dealt with ED for a long time, but not diabulimia. You want a kick in the butt, though? I can do that! I didnā€™t take very good care of my diabetes for the first 19 years I had it. Partly due to an incompetent endo, partly due to the young person invincibility complex. Iā€™m now almost 28. Iā€™ve had to give up my favorite hobby (target shooting) due to nueropathy in my hands. Some mornings my hands are so bad I canā€™t push the buttons on my phone to turn my alarm off. Iā€™ve gotten up in the morning before and not been able to turn my bedroom door knob. Iā€™ve spent endless nights lying awake due to the pain, which makes for a very difficult day. I fear that if Iā€™m holding my 4 month old niece, Iā€™ll drop her. I scraped my knuckle at work and tore some skin off of my finger. It took over 2 months to heal fully, Iā€™m terrified of losing one of my fingers. I also have severe non proliferative diabetic retinopathy. There is nothing more humbling than an eye doctor telling you that your best isnā€™t good enough. While I havenā€™t lost my license, I try not to drive anywhere I havenā€™t been before because road signs are difficult for me to see. I have a very hard time reading normal black on white print, and I am an avid reader.

I know you know about the complications that high blood sugars can bring, but it isnā€™t until you have complications that you really understand. Maybe, everytime you feel the urge to binge or eat without insulin, you could think about what youā€™ll feel like in 10 years. I can understand the pull of ED, Iā€™ve struggled with my weight and with the food Iā€™m eating for most of my life. I urge you to get help! Talk to your endo about finding a counselor that deals with chronic diseases. And you know what? If you mess up, if you do something you arenā€™t ā€œsupposedā€ to do, please remember that itā€™s okay. We all have weak moments, we all have vices, we all need help sometimes.

2 Likes

First I would run an experiment to see if itā€™s actually a carb addiction driving it.
*do the miss a meal basal tests and get that right first.