Doctor Visit

Type 1 and LADA
1

I have my Endo appointment today or this afternoon rather, and all of a sudden I don’t even know what to ask, coming from a girl who usually writes everything down for everything. I’ve been D for years now but I still have questions every now and again as we all do I think, an this place is the place I go because no one is around me to chat with and my endo is next to nothing, which isn’t that great of a thought. I feel people don’t care about D if they don’t have it, and most people I know don’t know jack about it, and when you want to chat about it it’s more of you answering the questions not the other way around.

This would be my second time seeing my new endo, I normally go every three, and he seemed very eager to help improve my D. said he can’t say that for some of his patients, which I find a little rude but if your D you have to put in the effort, I don’t think I’m that bad of a D. I follow all the rules to a point, but I’m still considered to be uncontrolled D. which I guess overall if you were to look at my readings I am, but I do all I can. Only thing I really have is my sight has gone a bit, but nothing more then that thank god. I am on the pump, MDI as needed (if BG is way high normally not that often)

I know we all are suppose to be with-in a range, with A1C and BG readings and everything, but I feel that even if I have good days, with what I see, who is to say when I’m not looking the numbers are bad, (this is where I know a CGM would help, have made a topic about this already) I feel because I have been D for so long things should have mellowed out by now. But clearly as with everything else, luck has me different then most once again.

I know I can improve things, always can, but without the motivation, and not great state of mind, I guess that’s why I am still uncontrolled. One event after another, stress…I can try to workout everyday and tone myself, try an lose a little weight, though most say I look fine, I could improve what I eat as well, but clearly what I am doing, all that I have tried leads to nowhere.

After reading some posts over the past few days gets me thinking, new things that could help that I haven’t heard of, but at the same time, with how I am right now, it’s hard for me to even get up in the mornings.

Over the past, I have found out a few things, at which I hope would shine some good light on my upcoming A1C.
Like I use to not eat breakfast, I do now because it makes my lunch BG great.

Other times I question if I am even D, I remember a few time but most recent time, I had just got back late from a concert, ate something relatively small and didn’t cover for it, and was way low that morning.

Well I feel I am not making scene anymore with what I am typing or just rambuling on, and not really sure what the response I was looking for with this, but I thank you for taking the time to read this mess. aha.

~Sarah

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I think many of us feel the same way quite often: frustrated by the unpredictability of diabetes, tired of the day-to-day effort, dealing with life’s other stressors on top of diabetes. The support we give each other here helps keep us going, both when we’re down or troubled and also when we have positive experiences to share. I hope your appointment goes well and that your endo endorses getting a CGM.

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Here’s a hug! :: hugs ::

I would strongly recommend the CGM…it’s literally made me not pull out all my hair at my 2 year old son’s T1. Without it I never (literally, maybe 1 hour per night…in staggered increments of minutes) slept, since getting the CGM (with the audible alarms when you reach high/low thresholds), now I sleep better. I still wake up 10 times per night to look at the receiver just to make sure it’s working and the numbers REALLY ARE OK, but it’s made SO much of a difference in my (a parents) life…I would think it would be a must have on every diabetics list. Seriously consider it. Seeing the “trending” anytime, day or night…double arrows up/down (pay attention time) and all that…I just can’t express how much i think you’d benefit from it.

Also, you indicated you were on the pump but you still MDI? You can’t do corrections with the pump? Trying to figure out why you would still need MDI if you’re on pump?

Oh, and here’s just one more hug cause who doesn’t like lots of hugs from strangers. :smiley: :: hugs ::

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Just started this site about 3 months now. I feel alone and family and friends don’t understand my concerns or how to help me answer my questions. Diabetes is variable with everyone and I always want a constant set rules but learning I have to close that thought process. When I started people here recommend the book Think like a pancreas AND I have to say it was an eye opener to the variables of diabetes. Just me letting go of my wanting to constant steady of exact doses. It has helped so much . I ventured to try my 12 hour to 10 hours only at night going to 9am to 7pm set daliy and that little change has made all the difference. A1C has 7.2. I have never been under 7. But have hope that will change in near future. But just wanted you share and think like a pancreas book maybe of help.

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Agree with Harold!

A Dexcom CGM makes a world of difference in your ability to manage your BGs. Can’t recommend it highly enough.

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Sorry for the short message back, been moving around an am on the phone, thank you for the hugs. As I said I had talk on another forum of a CGM. I do MDI when I know the pump isn’t working right and change it or if I have a high number, it’s faster acting for me.

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