There’s a facebook group called something along the lines of "type 1 should be renamed."
They said it gets confused with type 2. I completely agree with wanting to change the name. Do you agree?
I mean they probably won’t change the name but I just want to know your opinions.
No, I don’t agree. Diabetes is Diabetes, no matter how you get it… Getting to Rome through a different road does not make Rome a different city, even if that road has more immediate obstacles along the way. My dad got all the same complications, and bad things, a Type 1 may suffer… and he died from his Type 2 Diabetes. That doesn’t make it any more different, in my book… Plus whatever Type 1 named itself to, people would know even less about it because of the lack of association, and miss out on money, and new technology. I honestly believe the only reason people want to be renamed is because they have a social stigma against what they assume and think is a “an obese person’s disease,” and things are not as simple as that… and a lot more complicated than media/statistics/and dumb Associations would have us believe. There is all kinds of research right now that shows how much of an immune disease Type 2 Diabetes is, and how our bodies fail to communicate with insulin and leptin, and how this in turn, causes weight gain, and such… yet you never hear that on the news… It’s all about how people “ate their way into diabetes,” and it’s all really very frustrating. I guess we are the new social pariahs of the 21st century. Anyway, I do NOT believe Type 1 Diabetes and Type 2 Diabetes are different diseases… But the same disease on opposite sides of a spectrum of ways on how to get there and complications.
No, I do not agree. Changing the name will not make D any easier to control or live with. We are all to worried about everyone else’s perception… The only time I really get upset with being called a T2 is when a doctor uses the ICD9 code for a T2 on a lab slip etc. and when brought to his attention he says it doesn.t matter. It does for my insurace benefits.
You can call diabetes whatever you want. Call it pink fluffy monster if you like. The medical establishment probably isn’t going to change the name though.
I do not agree. It adds nothing to the care and treatment of the disease, and only serves to be divisive of the diabetes community.
Hi all,
There has been numerous discussion on the site about this very controversial topic. Some of them had been close down because they were not contributing to the discussion:
Classification
A better name for Type 1 Diabetes?
Some of them by the contrary have a more positive message, one of unity, fraternity and support: Aren’t we all the same…TYPE 2 AND TYPE 1 ???
To all, please take some time to think about your ideas, and read the boards before. It may save our big friendly community some unnecessary division.
Muhaha, excellent timing for this discussion! Tying and Tyang maybe.
LOL!!!
Or 101 mg/dl like on EVERY Accu-Check meter box!
My opinion is…I’ve been a Type 1 so long I wouldn’t know the term if they renamed it! LOL!
They already renamed it from juvenile diabetes, and I don’t think that helped anyone get clear on the concept who wasn’t already in-the-know.
What does age have to do with anything?
I was just asking if they agree with the facebook group. Plus the newer people can answer because this post is newer.
I don’t think public ignorance should be a reason to rename a disease. It only serves to divide a community that deals with many of the same issues on a daily and long-term basis.
Well said, Emmy.
Mmm, I remember that I was told that I had “fatty liver” back in about 1997, when my BMI was within the normal range. I wonder what that was about. At the time, the doctor said not to worry about it.
I don’t agree–look at Muscular Dystrophy…they types are too many to list (my guess is eventually they will figure out diabetes has more ‘flavors’ than they currently think too)
Diabetes is a set of diseases that, even when the same type (as currently defined) do not necessarily act/effect a person in the same manner.
My PCP/FP (good partner with my endo and part of my health care team --that are in unrelated practices) puts it so–you either have the gens for diabetes or not. Thats why there can be skinny type 2’s and overweight/obese type 1’s…or whatever flavors they may be reneamed in the future.
For a number of reasons, I believe that Type 1 and Type 2 diabetes should be given different names, and I believe it is very important to make the distinction. (I don’t actually believe this will happen, just that it should). Autoimmune diabetes and Type 2 diabetes are two different diseases with different genetics, triggers, treatments, and cures. The “blurring” of the distinction between the two diseases has severe negative impacts for the many of us who have adult-onset Type 1 diabetes (sometimes called LADA or Type 1.5). Because there remains the myth that Type 1 is a childhood disease, I and so many others received improper treatment because we were misdiagnosed as having Type 2 diabetes. “Unity” and not making the distinction between the two diseases has absolutely harmed me and so many of us here on TuD. Undertreatment of Type 1 diabetes at any age of onset hastens the onset of complications and causes needless suffering and potentially death (people have actually died due to being misdiagnosed as having Type 2 when they in fact had Type 1). The appropriate treatment for Type 1 diabetes is exogenous insulin, with intensive treatment begun as early as safely possible after Type 1 diabetes is diagnosed. People who have autoimmune diabetes should not be treated as if they have Type 2 diabetes, and antibody testing (GAD65, ICA, IA2) is the gold standard for diagnosing Type 1 autoimmune diabetes.
Type 1 and Type 2 are both terrible diseases, and I actually don’t believe one is worse than the other.
Francesca’s age is irrelevant to the discussion.