Our daughter is 12 and in her 5th year of T1D. She is NOT celiac. But we have often noticed that her numbers are super good with rice and not so much with wheat. So when this study in British Medical Journal about a child going in to Remission after gluten free diet got published
(Ref: http://www.ncbi.nlm.nih.gov/pubmed/22729336) - I got curious.
Although remission is different from Cure, I got hold of the paper through one of my friends in Medical Research. Went through it and it is pretty interesting - it states that number of GAD antibodies and Islet antibodies remained unchanged for 20 months (means they were still present) but the child required no insulin. To me it says that the boy probably was in honeymoon and as soon as the gluten was stopped for some reason the attack on pancreas also stopped despite the antibodies being present - so is there some connection here?
So I started my daughter on a wheat free diet - Note that she does not miss much. I make every single thing she used to eat without wheat - pizza, bread, rolls and you name it. This is her 4th week without wheat. Her numbers have truly been great so far. She was experiencing wild swings in her numbers due to puberty and they are like calm waves now. She has a CGM with her and does blood based test before every meal. Although I am not suggesting remotely that this is towards a cure - but I am certain that her insulin sensitivity has far increased AND I am totally surprised that the medical community does not even hint the possibility of this happening. May be my child is Gluten-Sensitive if not Celiac..
BTW, I also read in this paper that -"Up to 10% of patients with T1DM also have celiac disorder and, interestingly, the two diseases are by far the
most common observed combined, if diabetes is the first
to appear, and seldom if celiac disease develops fi rst and
gluten-free diet is implemented" - which is quoted from -Cosnes J, C ellier C, Viola S, e t al. ; G roupe D’Etude et de Recherche Sur la Maladie Coeliaque . Incidence of autoimmune diseases in celiac disease: protective effect of the gluten-free diet. Clin Gastroenterol Hepatol 2008 ; 6 : 753 – 8
I am going to observe her for next few months before introducing wheat again.
Would love to hear from other T1Ds with similar experiences