Hello, new here T2

I’m just sort of introducing myself and hope to hear others’ experiences. I was diagnosed with T2 in 2005. I started doing Dr. Richard Bernstein’s diet right away and lowered my a1c to 5.7. I was not on medication all those years until now, just doing low carb and able to keep my a1c decent, though never where I wanted it to be. It has been anywhere from 6 to 6.7, depending. Having gone through a lot of grief, loss, and stress over the years set me back, and gradually it seemed it was harder and harder to keep blood sugars in a good range. My fasting bg has been climbing higher and my pp bg is higher in spite of eating low carb usually. I tried metformin but after a month of feeling like I had a stomach flu every day I decided this was not going to get better and was not liveable. I asked my doctor if she would prescribe a fast acting insulin for meals and she did. I’m on Humalog on a sliding scale. Most of the time I just need it for morning breakfast. But even eating 10g carbs per meal or less I find I often need some with my meal or it climbs and does not go back down after 2 hours like it used to. I walk 30 min. a day sometimes 2 or 3 times a day, after each meal. I only had one serious hypo which was the first time I actually used the Humalog. I made the mistake of doing a brisk walk after taking it before it was done working and my bg dropped to 49. I was able to quickly bring it back up to normal with glucose tabs. I’m used to how it all affects my body now so I don’t have hypos, and I’m more careful about timing my exercise. Sometimes I can skip the humalog and just do the walk.

So anyway, that’s my story. I’ve been reading some of the posts for a while and find it very interesting how different everyone’s experiences are!

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Welcome, Gin803. Glad to meet you. I’m a T1 also on Humalog. I, personally, can’t stand high BG and tend to dose insulin very aggressively (sometimes too aggressively). So, I tend to struggle with lows more than highs, but everybody is a little different and I go through phases of difficulty with highs, too.

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Hello Gin803: so glad you have joined us and welcome to our community. we are delighted you have joined with us. I am T1 diagnosed 47+ years ago. If I can help you out in anyway please reach out.

rick

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Did they consider you may be Type1/LADA ? You can search and find many stories of misdiagnosis. Blood tests can confirm, and may be helpful if you decide to get an insulin pump.

I am T1, but my mom is type 2 for almost 40 years. Started on metformin but later on to the newer drugs, all oral. I have been on insulin 55+ years. There are so many different treatment options and overlap between T1 and T2s.

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MM1, I have thought of the possibility of being LADA, but when tested for it, was negative. My grandmother and mother were also T2 and on insulin. I seem to be very insulin resistant.

Generally a long acting insulin is first prescribed, your doctor must have had a reason for short acting. If you are very insulin resistant, you may also be a bit overweight as well. Supplemental Insulin can compound this. Increase insulin resistance and cycle to more insulin=more weight=more insulin. You may want to ask your doctor about GLP-1, SGLT2 or DPP4. These are unlikely to cause a hypo and a couple will help with weight and prolong beta cell. They may delay moving to insulin, till your insulin output can’t manage and have a low non-fasting c-peptide test…

GLP-1 may expand beta cell mass.

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Did those tests include at least a few antibody tests plus a c-peptide test? I recommend that you do a site search for posts by @Melitta who has written extensively on the topic of T1Ds misdiagnosed as T2Ds. That may not be your situation but it’s common enough that you should consider it.

I admire your proactive stance regarding your impaired glucose metabolism right from the start. I think you’ve likely prevented a lot of damage to your health. Your strategic use of walking to knock down trending post-meal glucose hypers is effective.

You may benefit from adding a long-acting insulin to your regimen. You don’t mention a doctor in your post; I assume that you are seeing someone regularly to monitor your status.

Good luck.

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I did look into LADA for about a year. I don’t think that’s what I have, but who knows? Either way, I have to treat the high blood sugars. I think my biggest problem is more “diabetes burnout” - just went through a lot of “who cares?” dealing with some depression and too many cheats, up and down with my perseverance and diet, tired of having to always keep track so carefully. Well, I did the damage i think, and now it is harder to keep it under control with diet alone. The only reason at all my doctor (actually not a doctor, PA) prescribed the Humalog was because I asked for it. I could not tolerate metformin and didn’t want any of the other drugs after looking into them, because of the side effects. I tend to not tolerate any oral drugs. Almost always when I take something it goes on my list of what I’m either allergic to or sensitive to. I can rarely take anything. I may discuss with her the long acting insulin next time I go in. I didn’t think I needed that… just a small amount of fast acting at meal times seems to work for now. As long as I stay low carb, I seem to do okay and keep my bgs in a good range.

We’re all familiar with diabetes burnout here. The all-day, every-day, never-a-break nature of diabetes can wear down even the most optimistic and proactive person. It’s tough.

If you spend much time here, you will come across people who, for one reason or another, delayed treatment with insulin and when they finally started insulin, they reported a psychological lift and an unexpected sense of relief.

Now, I know you’re already taking mealtime insulin and you may not need long-acting. Basal (long-acting) insulin is essential to maintain optimal glucose levels of T1Ds through a night’s sleep. Out-of-range glucose levels during sleep time robs you of rest your body needs to repair and restore vital body functions.

If your fingersticks are above 100 mg/dL first thing the morning, then it is likely your ability to sleep well is impaired. Under 90 mg/dL is even better.

This is consistent with slow onset type 1 diabetes and may not mean that your behavior has exacted any damage. You didn’t mention the result of a c-peptide test in your past. Your c-peptide levels could have materially changed since you last checked it. I don’t want to belabor this point and badger you about it.

A very low result means type 1 diabetes whereas an elevated c-peptide suggests type 2 diabetes and significant insulin resistance. It’s not uncommon for reasons I don’t understand that some doctors can be reluctant to order this test. C-peptide is a direct measurement of how much insulin your pancreas produces. Injected insulin does not affect this measurement. I will stop raising this point further unless you want to talk about it.

I truly get the weariness and state of mind that glucose dysregulation produces. I’ve lived with this scourge of 37 years now. Many people here have endured diabetes for decades longer than that. I think you deserve normal glucose levels and the physiological and emotional health that can accompany them.

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Terry, thanks for your insight! I did ask for the c-peptide but she did not think it was a test that would tell anything for some reason. She said there are too many things that can affect c-peptide. I did have one with a previous doctor years back. I don’t remember the number, but it was in normal range. It was more on the high normal range, not low. Thanks for your encouragement and information. I did feel a sense of being more in control once starting the insulin. I can’t imagine what it is like for those with T1 who have had this a lifetime. Sometimes you just wish you could just eat and not think about everything that goes in your mouth or whether or not it’s going to shoot your bg up. But reality hits, and once again I’m brought back to the realization that I can’t stop being diabetic, I can only learn to control it, and if I don’t I pay.

Oh forgot to mention that I do have high numbers at night and yes I do sleep really badly. My nights are a “series of naps” as my friend put it. I almost always wake up at least once sometimes 2 or 3 times. Sometimes I just get up because I cannot go back to sleep. I may get up at 2 a.m. and be wide awake and later around 5 finally go back to bed for a 1 hr. nap. Anytime I’ve woken up and checked my blood sugar it is anywhere from 115 to 130. So that is a problem. I usually take the most insulin in the morning with my breakfast. The rest of the day, as long as I stay low carb is not as bad.

You can cheat quite successfully and still stay in range.
If you want to eat say an iced lemon loaf from Starbucks for example. I’m not admitting to anything. Just saying

For me I would take 4 units 15 to 20 min before I eat it and then chow down and surprisingly sugar stays flat.

Now you are type 2 with a lot of resistance so maybe you need 10. But whatever it is, don’t think you can never do it.

You just need to figure out how. That’s the one big advantage to insulin, I eat pretty much whatever I want whenever I want it.
And I stay in range about 90 percent of the time.

Luckily for me I don’t really like super sweet things or carb heavy things. It’s just a once in a while thing just because I can.

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A 130-150 blood glucose overnight is not very high but a healthy glucose metabolism will normally lead to a blood glucose in the 65-90 range upon waking. Of course, sleep can be affected by many things including glucose. Caffeine consumption late in the day as well as late evening meals can prevent good sleep.

Anything that affects the secretion of insulin by the pancreas will affect the blood c-peptide level. I don’t understand this medical provider’s dismissal of the importance of knowing how much insulin your pancreas is producing. If it’s producing next to nothing, that’s a significant reality. If it’s producing a lot more than normal, that’s important, too.

I agree, it would be wonderful to just eat and not have to think about the metabolic consequence. It took me many years to fully accept that I needed to own my diabetes. Once I owned my diabetes I just looked at food differently.

I realized that all the emotional trappings that surrounded certain foods (think “comfort foods”) were an agenda that I brought to these foods. I wasn’t born with these appetites; I learned them. That gave me the power to remove or add these feelings to any foods I chose. These days I choose to grant these emotional attributes to foods that are kind to my blood sugar.

It’s kind of like the mind game I went through when I quit smoking. If you glorified and embellished the feelings around the after dinner cigarette, then that set me up for failure when I would eventually cave to that desire. But if I instead pictured licking an ash-tray when I wanted to smoke, it made changing that habit easier.

I think it’s powerful to think in terms of being a person with agency and choices instead of being a victim of life. Diabetes is simply a card in the hand you’ve been dealt. Life made that choice and you can argue or bargain with it all you want but you will never win that game.

But you can fully accept it, embrace it, own it, and then make choices that empower your physical and spiritual self. Diabetes is hard; there’s no two ways about that. But when you can manually drive your glucose metabolism in a healthy range, day after day, then you can take pride in that accomplishment. Those skills and discipline can then be put to use in other areas of your life to great effect.

No one who operates their glucose metabolism on “manual” will ever produce the kind of control that a healthy pancreas can, but you can approach that level of control. It’ll never be perfect, but it can be better.

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Yeah, I’m trying to figure out for me just what covers what. I had lunch at Panera today and had the lowest carb soup (Turkey Chili) and half a sandwich…all low carb ingredients, but a slice of bread with. Bread does me worse than anything I think. I overshot my insulin and ended up a couple hours later at 69 and was feeling pretty shaky and goofy. I quickly recovered though. But I hate that. I normally take around 4 units with only about 20g carbs, so I do have to take more if I’m going to have a cheat, but it’s hard for me to figure out just how much. Most of the time I can figure it out but today I guessed and guessed wrong.

Yeah, I did have a very healthy outlook on it all, became a good cook and good at substituting my old foods for better healthier low carb, was happy with it, and didn’t complain, was just thankful for the good foods I had now and all the new ones I learned to enjoy. I had a cooking blog, wrote a cookbook and had it published, and had a positive outlook. Somewhere down the road I let myself get just tired of it all. I guess it was the emotional stuff I went through… Lost my son, lost my sister, my husband developed Alzheimer’s, I’m also caregiver to a son with Asperger’s, lots of other emotional things, and I began emotional eating. Covid did not help that… When shut in with nothing to do but cook and bake for comfort I was drawn back to all my comfort foods and developed a bad attitude towards it all. I keep telling myself, food is not going to make me feel better, or be happy. It will only make me more miserable. I know that. I’ve always had good healthy eating habits…even before diabetes. It was one disease I was not going to get. I always watched my diet and my weight so I would not get the family curse, but I got it anyway. I was never an emotional eater, but I have become that and now have to get back to the good habits I once had. I guess there has been too much in life that took precedence over my health and eating perfectly, (and I was a perfectionist when it came to my diet and counting macros before) but I do know I have to keep my health in order to take care of others. I think my perfectionism finally burned me out and I wanted to get free of it.

Well I guess I gave you more info than you bargained for, lol, sorry! That’s the short of my story. :wink:

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That is tough stuff. Not sure how well I’d do when set back on my heels with all that. Your situation humbles me. It’s like you can deal with one set-back but when life gangs up and hands you a second and third emotional bomb, the cumulative load gets to be too much.

At least you are conscious of all this and seem to know the way out of this emotional labyrinth. You’ve been successful with this before and you can do it again. In fact, your simple survival of all this trauma is, in itself, no small victory. I wish you the best!

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Gin803, my gosh you have been through so much. It sounds like you have had to be very, very strong for a very long time. Welcome to Tudiabetes.

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Thank you for those kind words Terry. Not easy but with Jesus I get through it all.

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Thank you Marilyn. The Lord is my strength. :slightly_smiling_face:

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HI, Gin803, I was dianosed T2DM in 1992 or 3. I too used Dr. Bernstein’s book to achieve near normal BG levels. I was good for 10-12 years and then BG began to spike once again. No amount of carb restriction and exercise made any difference. My doctor told me that T2DM has tendency of progressing. I started Metformin, later added Lantus. I was having elevated BG levels again, probably stress related, but I convince him to do a C-Peptide and GAD. Both ruled out LADA. Soon after the stressful situation ended - I retired, my BG came back in line,

I’ve been retired nearly 6 years now. My HbA1c recently went up 1% over a year. I have a new doctor as the group where my old doctor works won’t take my insurance. I told her my concerns and have started MDI adding premeal rapid Humalin to the rest. She gave me a sliding scale based on preprandial BG levels, but that didn’t seem to work as my postprandials would be quite high. I am an analytical person. From the data I learned how much Humalin to dose based on the future carbs.

I even bought a digital food scale, a NutraTrack Mini. It has been a real help. I have so-so days and really good days blood glucosewise with the good days becoming the new normal.

I hope that you will begin to feel more comfortable with MDI. My hope is to be approved by Medicare Advantage for a Dexcom G6. I test a lot- 9 times yesterday.

I want to add that I do a bit of correction in my premeal dose. If BG is up I may add an extra unit to the dose the coming carbs will need. So far so go, no hypos.

And we are all unique. Pay attention to which carb foods affect you the most. My example is corn. I can eat a moderate amount of whole corn or corn chips without big spike, but a friend of mine gets huge spikes from corn. You may be more sensitive to wheat flour. I go more what my meter tells me than things like the glycemic index.

See you around on the forum

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