Hi everyone, I’m new here. I joined because I wanted some help/feedback/thoughts on some issues I have been having for the past year with hypoglycemia and reactive hypoglycemia. I have Hashimoto’s disease, and my thyroid is off, so I’m not sure if it’s related to that or if it’s something separate. At 14, I was diagnosed with hyperinsulinism through an OGTT, but I don’t know the details of the diagnosis or what actually happened during the OGTT (I just remember getting horribly sick during the OGTT test).
Anyway, my reactive hypoglycemia has been getting increasingly worse in the past few months. I ended up buying a bg meter (Freestyle Lite) and testing my bg. Sometimes I end up testing 15 times a day because my bg can be so unpredictable, but most of my issues revolve around eating. Even low carb meals can cause hypos. I’ve read for hypothyroid it’s best to keep bg 85 or above, but I am lucky if I can keep it above 80 without eating constantly. Fasting bg is in normal range. Fasting A1C, C-peptide, and insulin are normal. First thing in the morning my bg is usually in the lower 90’s. So all normal.
Anyway, more details on the reactive hypoglycemia… My bg sometimes doesn’t change at all after eating, or it will go slightly lower (85 before meal, 70 after meal). But the other day I reached a new bg low. 2.5 hours after dinner, my bg was 131. My bg tends to be higher for longer in the evenings for some reason, so I wasn’t greatly concerned. 20min later I start feeling really nauseous. I check my bg and it’s 58. It’s the first time I’ve had a reading below 60. Adrenaline kicks in (heart palpitations and sweating) and slowly brings my bg back up to 84 an hour later, but it seems whenever I have these lows, my body relies completely on adrenaline to bring my bg back up. I’m not sure if that’s normal either?
Anyway, on Thursday I am seeing my endocrinologist again. Last I heard from him was 6 weeks ago, he asked me to call him and he said he was really worried about my hypoglycemic episodes, and then goes MIA while his office is moving I’m going to ask him to test for LADA-related antibodies. I read about a case study that was very similar to what’s happening to me. But these episodes are becoming more frequent and are starting to keep me from going too far from my house, and they are starting to freak me out a bit. It started with episodes in the middle of the night where I would wake up drenched in sweat, even when it got cold at night.
Sorry my post isn’t very organized, but I wanted to get some feedback from other people, because I’ve tried to email my doctor and he won’t respond… And I don’t know what to do. When I try to correct my reactive hypoglycemia with glucose tablets, I usually end up causing another reactive episode So right now I just wait for my body to figure it out, which isn’t great haha. I’ve made a lot of dietary adjustments, going from moderate carb to low carb to virtually no carb… I’m sticking to just eating vegetables, fish and nuts right now basically, but I also eat gluten free (wheat allergy), so eating is becoming harder… I walk 1-2 miles 5 days a week. I wanted to start biking to work, but I’ve put that on hold because of my bg issues. I’m having problems with brain fog, memory, and fatigue (could be thyroid related…?)
Thanks in advance for any responses!