I just wanted to introduce myself

Hello my name is Tina and I have a son with Type 1 diabetes it is actually Brittle diabetes. I just want to say that I am so proud of my son, he was diagnosed in 2004 and he is now 10. He is my world and my hero! The strength that he has is amazing.
He has been through so much on top of his diabetes. He lets me know when he is feeling low or even high, he tests himself, and he also gives himself his own shots. He is still unstable and we are constently changing the amount of insulin that he recieves. He can be sitting watching tv and his glucose will drop for example into the 40s, or he will excercise for more than an hour and he will have a glucose level in the 300s. I am thankful that I came across this website, I only find things or information that is related to type 2 diabetes, this is the first website that I have found that is about type 1 diabetes Thank you

Hi Tina,

My son was diagnosed with Type 1 in March 2006 when he was 10. It caught us by surprise since we do not have any history of diabetes in the family. Drs think this auto immune reaction may be the result of a viral infection or some other environmental factor. Who knows???
Its good to hear that your son can test himself and give himself his own shots. We hear so much of some kids struggling to cope with this themselves.
Our Harry has managed to control his sugars quite well up until now. They’re all over the place now. We think that the onset of puberty is throwing everything out of whack. Next week we are going to the children’s hospital to have a pump attached. Dr feels that Harry is a good candidate for this kind of treatment as there is no pattern to the irregularities of his hypers & hypos and especially because he is compliant. Anyway, the decision was left up to Harry and he is OK with that. I’m just praying that the infusion set process is not traumatic for him.
Tina, I wish you and your son all the best.
Bye for now
James Vella

my daughter was diagnosed in 2006. she is eight now. she has been on the pump for about 8 months now, Harry will love the pump. WE found the antimas pump to be very safe and easy to use,.Life is a lot less stressful now. good luck

Hi, Tina. This is a great site, and I have learned so much by reading the adult posts, both Type 1 and Type 2 postings have been very helpful to me (Type 2s, since they initially control blood sugar primarily with diet and oral meds, have taught me a lot about food and how certain foods spike, etc., as well as how low blood sugar range truly should be). There is a wonderful website set up just for children with diabetes. Google “children with diabetes online” You can find so much information there on the “Forums”. I have used the chat feature quite often, but find the forum information far superior. On the chat it depends who is on the other side, and if your philosophy on how to treat D differs, you may disagree with the advice given. When my niece was first dx’d, I asked the endo if she had “brittle” diabetes and he looked at me like I had two heads, LOL. Clearly, I did not know what we would be dealing with. He did say they do not use that term any more but I think it is a very accurate term Since the disease effects the metabolism, it stands to reason that each person’s experiences would be different, some having a much harder time than others. Are you interested in trying out one of the new continuous glucose monitors? Sounds like that would be needed for your son since he is so unstable You can use the continuous monitors with either shots or the pump. I would investigate the continuous monitor group and also check on childrenwithdiabetes.com for info on that. I do hope you will look into this and your insurance will cover it. It can be a God send. Dropping into the 40s for no reason, when stable basals have been established is scary and the cgms would catch that.

Thank you all for the support, and hi James I am so glad to hear that your son can go to the pump. Since we are unable to stablize my son we are not eligible to use the pump (but we are hopeful) . I think that your son will do well with the pump, Brandon, is hoping to be able to use the pump so that when he is at school he can feel like he fits in. At this point he has to go to the office and gets his shots and eat his lunch. I will say a special prayer for Harry and both you and your wife. Thank you so much for your support


You know what??? LOL
I asked the same question to the nurse of the doc. that treats my son, and she refused to even consider such a thing, she blamed me for his drastic changes in blood sugar. I will check in to one of the continuous glucose monitors, I appreciate the info. and I will get back to you on the out come.

Thank you again


Hi, you have a problem if the nurse/CDE and endo are not onboard with your quest for trying the continuous monitor for your son. You need to find a doctor or endo who will write a letter of medical necessity for your insurance company so you can first order the device. You then may initially be denied and have to fight one or two appeals with the insurance company (this is the norm) until they agree to cover the device. There is a lot of documentation on the children with diabetes.com continuous monitor forum. Hypoglycemic unawareness, wild unexplained swings in blood sugar, these are grounds for use of cgms. Keep a daily log book. Document, document, document. Download and save those 40s and below on the meter. Try to find an endo or doctor that will help you, not brush you off. Good luck!

Hello My name is Tiffany and my son was Tyrese was diagnosed April20,2007. He started the pump 4 months later. Tyrese Had just turned 2 when he was diagnosed. Their has been alot of highs and lows and it has been very overwhelming but this site seems like it is going to be very helpful and supporting.
Mother of Tyrese