My proclamation concerning cinnamon!

I urge you to forget about the cinnamon as a BG improver and also forget about eating "4 pieces of bread (rye) and 4 slices of ham and cheese loaf."

179 is still way too high for comfort for me. Cutting back on those slices of bread will do far more for your health than a bucketload of cinnamon. Please consider both of these: Test, Review, Adjust and Cinnamon, Spices, Herbs and Similar.

Cheers, Alan, T2, Australia
Everything in Moderation - Except laughter

Yeah, I agree with Alan S and AcidRock. If your BGs are that high, you should be on insulin, not oral medications. You’re still WAY too high. If you are a confirmed type 1 (either a regular ol’ T1 or LADA, with antibodies), insulin is what you need because your pancreas cannot make enough to cover what you’re eating. Victoza is only for T2s, NOT type 1s. In fact, this medication can be potentially dangerous for a T1 because of potential kidney damage.

If your current endo is not willing to prescribe insulin or wants to take a “wait and see” approach, I urge you to find another endo. Every time your BG goes up like that, you’re causing some serious damage to your body.

Umm, actually Byetta and Victoza have been studied as insulin, but not only in a basal insulin/GLP-1 regime.

I agree with the others, MyBustedPancreas said it so well. Insulin takes a little work, but the reward is that you approach a normal life with normal blood sugars. Please consider changing endos if your current one won’t give you the correct treatment for Type 1.

+4.

Sorry to be blunt here but you are really not doing yourself any favours by eating so many carbs. It’s clear from your dangerously high blood sugars that you are eating more carbs than your body can tolerate. Trying to then ‘fix’ these dangerously high blood sugars with a cinnamon pill is like trying to wipe up the ocean with a piece of Kleenex.

A diabetes-friendly diet does not have to mean deprivation or misery or starvation. Eat to your meter. At the moment, pregnancy is making me insanely insulin-resistant and I cannot tolerate any carb in the morning. Zero. So here’s what I have been eating for breakfast this week: avocadoes with swiss cheese and smoked ham, bacon and spicy shrimp omelette, Bavarian weisswurst sausages, sliced chicken with lettuce and tomatoes, and even, the other day, a bacon double cheeseburger with the bun thrown away. All of this food is tasty, filling, and most importantly, gives me post-meal blood sugars of about 100.

That mini-sized box of cereal you had was obviously too much carbs for you. I know those mini boxes, they look like such a tiny portion but actually contain 40-50grams of carb per box which is a lot for that time of the day when most of us are most insulin resistant. I’m not saying don’t eat it - but if you must have it, have it later in the day when it’s likely to spike you a little less.

Every minute you walk around with high blood sugars, you are slowly killing yourself. And high means over 140.

Cinnamon is going to do zilch if you continue poisoning your body with carbs that it cannot handle.

Yowza. Let me see if I have this story right.



You were diagnosed with diabetes in 2000 and at some point after that were confirmed as being LADA.



You have not used insulin and have been using metformin and glyburide



Lately you used Victoza, but only samples from the dr, it worked ok



You have been able to keep things “ok” for a decade, but have had to resort to a very low carb steak and salad diet with meds to maintain blood sugar control



Lately, if you eat carbs, your blood sugar is going way to high. 4 slices of bread left you in the 300s and you did not come right down



And your blood sugar control (based on your A1c) has really deteriorated.



Is this right?



If this is the case, you need to get your mind around the situation. You have to make a transition to insulin, and it is in your best interest to make that move soon. Many beleive that early use of insulin can keep your remaining beta cells going, and this is a big advantage as it will make your blood sugar control a lot easier. If you wait around for months with high blood sugars you will not only start to increase your risk of complications, the high blood sugars actually poison your remaining beta cells.



So please do some self exploration. Do some hard thinking. Get your head around insulin. This is your life and health. We may imagine using a needle is terrible, but in hindsight, almost everyone here will tell you that you very quickly get over it. For me, testing my blood sugar hurts more. And you should not fear hypos, you should fear complications. So please, think about it and get clear about your priorities. I know you will choose right.



You can read about my experiences starting insulin, I chose to advocate for myself and make my own choices. I did not want to end up with high blood sugars for a long time before my doctors bothered to act. I recommend you be your own advocate. Get an endo if you don’t have one. Be clear and insistent about your health and ask (or demand) for insulin as an appropriate treatment [1].



[1] If your doctor questions the appropriateness of insulin, bring this guidance from the American Association of Clinical Endochronologists which says that if your A1c is 9% and you are already under treatment you should move to treatment with insulin.

ps. And I recommend you avoid the double pastrami sandwich on rye until you start insulin. Once you start insulin, you can choose to count the carbs and bolus and it will be ok.

Thank you Alen,

This is my goal indeed.

HI Trudy…

Ya I’m going to hit him up this morning on all of this. I guess I just again dont want to be experiemented with the insulin, I am on a seriousl tight budget and my hope is the insurance will cover or I may be screwed here.

Hi Lila…

Wow, well I am impressed here with your numbers like this, I guess the insulin is working for you. I was so sick from adjusting to the Victoza that for a time there I felt near death. I finally adjusted to it and used it until the medication no longer seemed affective. Now…re-adjustment to insulin is scares me as well too. I know me, I have many fallouts and they freak me out to use the term loosely. since this Victoza I have had no fallouts and it sooo very nice. However, its not working, havent been on it either. I like the pen idea, sure would be nice if my insurance company would cover the cost of an insulin pen instead of the other way. It’s like, with so many insulin choices what happens here? I’m a puppeteer until the right one works? will I be sick again off and on? I am hardly able to work under some of these conditions in which the meds have affected me.

Hi bsc…

Thank you here, and yes to most of the above questions. I had to quit the Victoza because my insurance company said the Obama health care plan changed their plans and my Victoza went up from $40.00 a month to $190.00 a month for 3 pens and well with my budget I told my doctor cant do it. So, he opted to keep me on the Victoza while he aided me until my next visit. However, they run short of it and I have been on and off the Victoza because of this. The last spell here was two weeks and now I am not willing to go back on it. Besides, its not doing the trick. So thats why the rollercoaster ride with Victoza. I only hope its not the same with whatever insulin he decides to aid me with or I will be using this over the counter stuff. No choice. I’m worn down and have had many physical set backs since being hospitalized in 1990 over pnuemonia and my lungs collapsing. Its a long story, but a I want to get back to good health. The kit I bought last night, Bayer A1C kit said my A1C was 9. So I need not to take a back seat here, I have to call him and see what the deal is. He is very popular and has many patients, I have waited up to 2 to 3 hours to see him but this last years I get right in for a change. Saw him 4 times this year already and between him and my other doctor for BP issues, then my blood test, well meeting the deductible is a joke. I am at the end of the year with the deductible paid only to meet it again. I see and Endocrinologist. My daughter stressed he is the man and he knows his thing. Geezz, he is unaffordable.

Hi btbrossard

Thank you on this…we shall see…

Hi Cosumne

Well that was a test drive, I was particularly hungry that day and opted to not go diabetic that day on account of wanting to test the cinnamon, it did make a difference but no, I dont usually eat like that, only when I get crazy on occasion.

Oh ok! but my say still applies unfortunately! LOL

Hey Gerri

No I am not using inulin. The fact that the OTC is not rapid is what I kind of like, I cant take those drop outs, had one driving some years back, it left me at a dead stop on the street and cars going around me everywhere, I didnt know where I was or anything. Just a dead stop waiting. I think the Lord helped me there because I then remembered where I was and was able to drive home and eat, the shakes were happening too. This is just one incident and I just cant take them when they come. Heck, I dont know, really, I dont know. I am to call the doctor today because I am beside myself with all of this.

HI Gerri

Really I dont know what I am, truly I dont. I have been going to this endo for 3 years and I hope to get straightened out. Not sure what caused the lows, they just come on, I suppose serious sugar levels dropping before I catch them more than likely due to wrong foods. Those drop outs are just way to hard to handle, its worse than a mini earthquake happening inside your body, I guess they are just un-explainable when it comes to what happens there but we have all had them.

The website and prescribing information must be approved by the FDA and are often out of date. Studies have been performed and the European Committee for Medicinal Products for Human Use (CHMP) just recently gave the green light to Victoza in combination with Levemir (although each country will need to make an individual decision on approval). Given the initial results, my crystal ball suggests that the FDA will approve it as well within the year. Bernstein also reports positively in his clinical off-label use of Victoza with T1s.

Me too bt, me too, thank you.

I understand the whole Victoza thing. I also paid a $200/month deductible on it and I was totally pissed that it was supposed to “improve” my blood sugar control, but all it did was raise my A1c from where I had been with Byetta. And I was p*ssed, I basically paid $1200 over six months for nothing.



But let me assure you, insulin works. It “will” bring your blood sugar down. It is infinitely powerful and when used right you can bring your blood sugars right down to where they should be. And while a lot of us have anxiety over the move to insulin, in hindsight it was nothing. What really helped me was becoming “smart” about insulin. I read a lot and two books in particular were helpful, “Using Insulin” by John Walsh and “Think like a Pancreas” by Schiener. Gaining understanding and confidence really helps.



I initially started with NPH and R, over the counter in vials from Walmart. They cost $24 for the vials and a like $15 for a huge box of syringes, you basically can take care of a whole month for less than $100. But the newer insulins are more expensive. I have good insurance, so I am fortunate, it actually only costs me $80 for a three month supply of my basal and bolus insulin through the mail order pharmacy. You can also call your insurance and get essentially coverage quotes to figure out which insulins are the least expensive. The best insulin choices are modern insulin analogs, Lantus and Levemir for basal (long acting) and Novolog (Aspart), Humalog (Lispro) and Aprida (Glulisine). The older insulins, NPH and R are available as Novolin and Humalin, while they are cheap, it would be best if you can start with the modern insulins (most find them markedly inferior).



And you are right about getting in to see the endo. My endo spends as much time as needed with patients (particularly long for the newly diagnosed). My last appointment was scheduled at 5pm, she fell behind, I went home and then came back in, she saw me at 9pm. So appointments first thing in the morning are key. Another thing you might consider is contacting the local diabetes center and having them help arrange a class to educate you on the use of insulin, injection technique, basal/bolus regime, matching your bolus to the carbs and most of all, many will help “arrange” things, getting a call through to your dr, getting approval and at times even getting a prescription arranged.

Hope that is helpful.

No reason that your insurance won’t cover insulin.

Hey bsc…

Wow, this is more than helpful, thank you very much, I am doing a copy, paste and print out on this info that you have sent. Ya the Victoza worked for about 3 months tops and suddenly ended. I will have to call my insurance company to see whats up, how I hate dealing with them, they are all idiots down at that office and just an over all rude people who work there. Bored with their lives and seemingly love to discourage people, its all about the money. Good insurance for the most part, at least at one time, but lousy employers running the business. Never thought to check out any local Diabetes Centers, I had a one time visit with a dietition that cost me $80.00 after insurance and that was back in the 80’s, I was more confused after seeing her than I ever was before our visit. I have this book before me, Eat to Live by Joel Fuhrman, that is my starting point. I am giong to call the hospital and see about the Diabetes outlets and see what I can do. I bet the Pharmacies have this info for various places as well, that was an excellent idea. This forum is a golden nugget as well, and…I dont feel alone, no…I dont feel alone. Everyone has been so dear and to the point, (which I need to hear) I so appreciate all these responses, they are wonderful, thank you very much too, it matters, yes it matters 100%.