New diabetic 1.5 lada

Type 1 and LADA
141

The Raw For 30 Days documentary does a good job of verifying just how quickly blood sugar can be controlled with intelligent food choices. It also gives you a feel for the Tree of Life center versus a trip there or even a visit to their web site.

Good share on the Bernstein monthly telecast.I have not missed one since I heard the first one six months ago. Replays are available for a month, too, in case you miss the live call.

Bernstein has benefited me greatly and saved me thousands of dollars. My last A1c was 5.9 and is declining. Not too shabby for a type 1.

142

Hi TurtleDove, I was on metformin and glyburide for 4 years and started insulin in june 2011, but only a month ago saw my first Endo and she decided i "might be" Lada 1.5 so she removed all the pills and said insulin only. They explained the best way they could how to use insulin but they did not explain accurately how to correctly calculate insulin carbs ratios. Since i was already on insulin, i decided to buy a book "think like a pancreas" in january 2012.

I also knew my BG was getting higher so i wanted to educate myself more and investigate why i was getting higher. Was it a bad diet or improper dosage or not enough physical activity? maybe...

But right now honestly, i feel worse, i have more anxiety than before and i am very irritable and i am having trouble concentrating.
I feel like my system is not liking this new no pills and insulin only treatment. When i was on metformin and insulin my blood sugar did not spike as much after meals.

I managed to reduce the lows by injecting less insulin before lunch.
i think the leftover insulin from the morning was still in my system when taking my lunchtime bolus and i was getting hypos for 5 days in a row.

But still i find it very difficult to be on target between 5 and 8 mmol.
I have to stabilize this as soon as possible because i want a normal life again. i always have this fear i might faint or go unconscious and it's creating more anxiety and avoiding going out. I don't want to be stuck at home like a hermit. I hate the Lows because i feel like crap for 15 to 20 minutes. I wish i could have a CGM so i know all the time where i am at and will reduce the anxiety of wondering all the time. I also feel worse when it gets warmer, like now it's spring and soon summer and i will feel more and more tired, i feel like i need energy, i am always tired and i have no endurance and my brain is foggy, i am not as sharp.
I need help.

143

is that like the disney world for diabetics?

144

Update.
I saw my family doctor today.
He said if they did a Ketones test and i was very low i might not be a type 1.5 but more a type 2 and yes they did one on me and i was 0.1

If i am a type 2, do i need to go back on Metformin asap? and continue with insulin combined.

Ever since they removed metformin i been feeling lethargic and drained of energy.

How long can it take before i feel better?

145

Somewhere I have the Raw for 30 days full length documentary. I will find and post. The trailer offers it at a fee, and all those other 'bonus' offers, ha.

Thank you for suggestion - Dr. Richard Bernstein, I will check it out.

My Method:) Jing Song

I eat lots of brown rice, and rice noodles. I stir fry, bake, or stem veggies. I eat fish twice a week, chicken twice a week, and steak once a month. I drink green tea, kombucha, coconut water, 1 cup of coffee a day, and 1 glass of red organic wine at night. I get acupuncture 1-2 times a week, and a massage, tuina, qigong, shiatsu, or cranial sacral 1-2 times a week. I walk a mile a day. I smoke 3-5 organic cigs a day, I take several Chinese herbal formulas. I take regular naps. I do about 1 hour of yoga, taichi, qigong a day. I am always in meditation. I test my blood sugar 2-4 times a day. I change my pump cartridge once every 3 days. I see my Endo and get lab work once every three months. I have my legs, my eyes, and my kidneys. I very rarely get sick. I have type 1 insulin dependent juvenile onset diabetes mellitus. In the last 5 years, I have gone from an A1C of 13 to 6. I have gone from 70 units of insulin a day to 20 units of insulin a day. I have, in my lifetime, gone from measuring a bg range on a stick that matches colors on a bottle, to a meter that took 5 minutes to calculate bg. I went from 10 shots a day to an insulin pump. I have watched many of my diabetic friends and loved ones, lose limbs, go blind, go on dialysis, and die. I have cut my hair and regrown it many times. I have a heart of a turtle, I will live long, and live happy on earth. I will hold my children, grandchildren, great-grand children, and great-great grand children and sing them a jing song... then, they will bury me, and from there a Rose will grow.

146

Type 1 Diabetes and Type 2 Diabetes are completely different conditions!!! All this 'typing' these days,,, this is why I am interested in this type 1.5. Also, kids with type 2. No two diabetics have the same 'type' of diabetes!

147

Alrighty then,,, you are not a newb. However, they did NOT explain the best way they could - how to use insulin. Forgive me, I have not read, Think Like A Pancreas. Forgive me some more, I will probably never read it. A Pancreas does not Think,,, it functions. And maybe yours still does,,, don't think about it.

There is no 'normal' life. There is your life. You are the master of your life, of your heart, of your mind, of your spirit.

I am sorry, I don't get 5 and 8 mmol. I get bg. Can you teach me this terminology? Give me a translation? A Bg of 120 is what mmol?

I am jealous of you, I wish I was type 2, or type 1.5. It doesn't matter. I want to diagnose you according to TCM, Traditional Chinese Medicine.

You are tired, insomnia, heart palpitations, anxiety, foggy brain, tunnel vision? depression? hungry, thirsty, no appetite, no thirst? bg up and down? dislike warm weather? feel hot sensations? any sweating, at night or in the day? how is your bowel movements?

I want to see your tongue and feel your pulse.

148

Turtle Dove, thank you for sharing your regimen and your history in such a succinct manner. Congratulation on getting your A1C from 13 to 6. That requires tremendous discipline, focus, and awareness of what a high A1C means long term, which isn't pretty. Some find Dr. Bernstein a bit radical, but his methods work.

Warrior, learn what a C-peptide test is and get one. This will tell you if you are producing insulin. If you are producing adequate levels of insulin, you are not a type 1. Period. Type 1's either do not produce insulin or produce an insufficient amount to properly utilize glucose. High ketones mean your body is using fat for energy because it is unable to use glucose due most likely to low or nonexistent insulin.

Type 1.5 is a designation for individuals who develop insulin dependence in adulthood versus childhood. This is due to the presence of antibodies which attack the beta cells of the pancreas, and typically occurs after the age of 40.

High ketones are a strong indicator that your body is not producing enough insulin to process glucose and is instead processing fat for energy. This is a potentially dangerous situation which can result in ketoacidosis. I strongly suggest you research this subject. I recommend Jenny Ruhl's excellent site http:/www.bloodsugar101.comm/

149

to convert mmol to mg/dl, you multiply by 18, or 120= 6.667

150

Yes, tired, sometimes insomnia, i woke up sweating a few times.
i got tunnel vision a few times too , very hungry right before lunch time. BG up or down frequently with dizzyness and confusion.
I get a numbness or feel my left hand getting stiff when i am having an attack, i don't know if it's anxiety or a hypo, hyper reaction. I am having trouble concentrating and i am forgetting small things, i am not myself.

When BG was high i felt my feet getting real warm and feeling of a heart beat in my left foot, feels like i just want to soak my feet in a container with cool water. Bowel is ok.

Blood pressure was ok at my last visit to the doc.

I hear it's good to drink a lot of water to protect your kidneys?
Maybe i don't drink enough water.

151

Thank you!

152

In TCM, Traditional Chinese Medicine, diabetes is Xiao Ke, the wasting and thirsting disease. In the Song, Ming, and Qing dynasties, and still today, most physicians diagnosis and treat xiao ke/ diabetes based on three jiao. The upper jiao is lung and heart. The middle jiao is stomach and spleen. The lower jiao has special emphasis on the regulation of kidney function. Symptoms of the three jiao 'types' of diabetes may be present at the same time. So many doctors today dx and tx on the basis of differentiation between Yin and Yang, Qi and Blood, and between visceral organs, classified into four types. There is also differences on understanding pathogenesis, there are 5 main types that serve as guiding principles in clinic diagnosis and treatment.

If I could look at your tongue, and feel your pulse, I could better say a diagnosis. Can you send me a picture of your tongue?

Based on your symptoms, diagnosis for you is,

Yin deficiency with deficient heat - nourish yin and remove heat

Qi deficiency - supplement qi and nourish yin

Qi and Yin are unable to hold each other together and maintain availability of their mutual support. There is deficiency of Qi so that Qi is unable to command the blood, due to deficiency of Yin so that there is consumption of body fluids and due to the scorching by the excessive internal heat - therefore, Blood Stasis.

Blood Stasis - invigorate blood circulation and remove blood stasis

If you went to a TCM Doctor, Traditional Chinese Medicine Doctor, they probably wouldn't concern too much with your 'type' of diabetes from Western term. They would think, Xiao Ke, and see it from a different perspective. They would not think like a pancreas, in Chinese Medicine - there is Not a pancreas. (I probably will get that "Think Like a Pancreas" book - I am a book collector. And read everything I can.)

In TCM, Got to clear heat, nourish qi, tonify yin, move the blood for you. Maybe some damp accumulation too, I would have to see tongue and feel pulse to know for sure. You say recent weight loss? I think more yin deficient, with deficient heat - usually presents more with type 1 diabetes. Insulin is a Yin Tonic. Maybe Metformin is Qi tonic. That gives me a way to understand pharmaceutical tx. Baby aspirin - blood mover.

If I was your TCM doctor, I would say, take a course of acupuncture treatment, once a day for a 6 days. 3 bags of raw herbs for 6 days. one day break. Repeat course 6 more days. one day break. Take acupuncture 3 times/wk for next 13 weeks, continue herbs. Total of 15 weeks. Along with changing your diet to meet your diagnosis to tonify qi, yin, clear heat and move blood. With qigong exercises to do this also. You would feel better!

Three things that Dr. Yu says to me about Diabetes,
1. Drink green tea
2. Quiet your mind
2. There is always a solution

Not one of my Chinese doctors or teachers say that a type 1 can get off insulin,,,, they all say a type 1 must take insulin, but can reduce it way down, and feel much better, strong, and healthy. It is very easy for a type 2 to reverse the condition and not need insulin or oral meds.

No matter the type,,, it takes patience, persistence, and perseverance. That's my three P's of Diabetes. Sweet P)

153

Thanks TD, i will send you a pic of my tongue.
I Also forgot to mention i have voice extinction or it
Becomes hard for me to talk for extended time.
Its like it takes too much energy from me to talk for
A long time. Thanks for the post on TCM, very interesting. :slight_smile:

154

Thank you Cincy Bob for the compliment. You are very clear and precise, easy to follow and obviously well educated. I am a emotional romantic poet, often marching around to the heart beat of my own drum.

DW, I know it's been suggested already and said many times, Have you had a C-peptide test? Or been tested for presence of auto-antibodies?

Cincy Bob, can you say why it is said that an individual diagnosed with LADA, type 1.5 has no need for insulin for the first 6 months up to one year? Why and how does earlier tx of insulin for this patient, keep the beta cells functioning longer? How would insulin therapy help this patient avoid total dependence on insulin? Why would oral agents cause the patient to lose function, go to insulin dependent state quicker, such as 'misdiagnosed' type 2 patients... taking ineffective oral meds and losing insulin producing beta cells faster? I got this info from Diabetes Forcast.

DW, at the time of your initial onset/diagnosis, what was your body type/size/weight? Prior to initial diagnosis what was it? Forgive me if too personal of question. I am looking to see your constitution. Also, I want to better understand progression - it aids in prevention, assists diagnosis and benefits treatment.

I think that type 1.5 is yin within yang, or yang within yin, a sort of transformational aspect in between yin and yang, in between type 1 and type 2. I feel this in a very abstract way.

DW, did you have any sort of viral infection post tx of T2? Anything with high fever, sore throat, skin eruption, or blisters?

Thank you!

155

... that was no insulin for first 6 months up to 6 years...

156

I also think a true type 1, could develop type 2 through progression in the course of the disease. It would not be noticed or even considered for diagnosis because they already have a diagnosis of T1, and that diagnosis is going to stick and would not change. I ponder mis-diagnosis, re-diagnosis, and question lab diagnostics.

I have a friend - Male age 38. T1 onset age 3. Blind in one eye age 13. Kidney failure two years ago. Dialysis and then Kidney transplant last year. Also pancreas transplant. No More type 1 diabetes! He has 5 insulin pumps, a cgm, blood testers and meters, and a bunch of other sweet stuff on a display case for show and tell. He got a new eye too! He used to be thin, now he is quite fat, he enjoys McRibs and french fries, diet-coke, all day everyday. Prognosis - Type 2 by age 40! So ironic!

Also, with the stem cell islet cell transplants... why does the body re-attack the islet cells and develop type 1 again in 5-10 years? I read they are improving this, lengthen the time frame, ect. But most end up back on insulin, at least a low dose eventually. And if not autologous stem cell transplant, yet a donor - patients have to take anti-rejection meds the rest of their life. Alas, I am thankful I was not selected for this last clinic trial before the piggy goes to market.

157

Sweet! Can you say again your opinions of Cousen's? Or say where to go to read the previous posts, if you don't want to repeat yourself? I would like to hear,,, even if negative.

Is the Raw for 30 Day documentary the same location of Tree of Life Center? I didn't think it was. My feelings after watching the full length documentary and looking at the Diabetes Reversal Program at Tree of Life Rejuvenation Center were, very well would work for Type 2, maybe Type 1.5 - I think the black man in the film probably had Type 1.5. The guy with true Type 1 who did not do so well in the program, cheated on the diet, treated lows with juice, used insulin to counter act highs, ect... was blamed for not following the program, blamed for his lack of success. He even sneaked off to drink alcohol. While watching the film, I was thinking this guy is not going to turn it around, not with this strategy, Yikes! Dangerous!

When I applied for Tree of Life Diabetes Reversal Program, I was like, I'm not going to be 'that guy' - I'll do what it takes and will not cheat. The application process was pretty clear regarding screening for mental health, drug/alcohol addictions, if those were conditions... other programs were available and suggested.

I qualified and was accepted to the D-Reversal Program. There were no scholarships available, I was put on a list for when and if that ever happens. Also, no trade-services allowed, they wanted participants to be fully committed to the program not working as practitioners or working in kitchen, ect. This made sense. I was attracted not just to the dietary approach, and life-style approach,,, also to the deep spiritual work to look deeper into the root cause of diabetes. I cannot say for sure that diabetes has a psychological /emotional cause for everyone, yet feel that it does with me. I have participated in sweat lodges, experienced many modalities of spiritual healing work, and get the mind-body-spirit connection. For me healing, does not mean Cure, and does not mean just managing or controlling symptoms, although it could in part, be included. So, I was excited to get in, take the time, have the space - to do some serious work. For me, these 'moments' of very deep inner healing work, I am in a space/time/dimension where - the word, diabetes does not mean anything. In this, I have concept of text book knowledge regarding function of pancreas, beta cells, islet cells, yet in this, it does not matter. In this, I feel that I get out of my own way, and my body does what it needs to, and I am not logically smart enough to understand it. Integrating this with a modern day life, with it's busy demands, and responsibilities, seems necessary and tricky to achieve and requires logic. I feel over-educated and super stupid. My straight A's and medical degrees and licence means nothing if I cannot integrate knowledge and experience awareness. In that nothingness, I feel a deep awareness of stem cells, undifferentiated cells, and an ability to manifest and become anything. The Jing essence, the genetics, the DNA. The possibility to cure any disease known to man. The ability to become human being, and live on this planet as a being in harmony with all my relations. So, I was drawn to the Tree of Life, without hope or expectation. Then, I realised - it's all lies, and I could seek truth and find wisdom inside and express it to the world no matter where I was, here I am, and it doesn't matter.

It became unimportant if I went to the Tree of Life or not,,, I had a vision of Cousens during a cranial sacral session, it was very esoteric and weird. I asked, can I come to your Tree of Life Rejuvenation program, and he said, Yes, if you want to. A week or so later, they called and said it costs $$$. I didn't have $$$. I think if I really want to go... I will get $$$. Then I got some $$$ and I bought a ticket to Costa Rica instead! I did not go to Costa Rica either. I stayed right here, and studied my brains out to pass my board exams. :)

158

Sweet!

No energy to talk, lassitude, lazy to do anything, that is Qi Deficiency. Lung Qi, Spleen Qi, Kidney Qi Deficiency - all three jiao of the triple burner, water-ways are involved. Good for diagnostic purpose, not so great for clinical treatment. Diabetes is complicated. You might be everything deficiency with excess patterns due to deficiency. Diabetes is complicated,,, no wonder nobody has solved the riddle. I think it is a God Quiz, I should have picked a different disease.

Diagnostic without treatment is pretty pointless. Can you search a Chinese TCM Doctor in your area that specialises in diabetes/xiao ke?

159

You should post your pic in the thread! I think that would be a first!

160

Did you tell the doc that? I think they'd usually take a complaint of being lethargic and drained of energy seriously?