I have peripheral neuropathy that only occasionally responds to neurontin. A couple of years ago I was hospitalized for DKA and a subsequent heart attack. While there, I was hooked up to pneumatic sleeves that covered my lower legs - the purpose being to prevent blood clots. I’m told that even while I was sedated in the ICU that I was screaming in pain and had to be restained due to my writhing. At the time my pain had been excruciating to the point that even bed sheets caused severe pain. Anyway, this devise would periodically inflate like a blood pressure cuff and then deflate. I was amazed at how they eradicated the pain. I was so impressed that I became obsessed with obtaining one of these devices. The problem was that insurance would not cover it, the cost was prohibitive, and all of the doctors at the hospital that I discussed it with were puzzled at how this unintended benefit worked. In fact, they’d never heard of such a thing. Fortunately, the level of pain has decreased, however I’m still interested in whether the cause and effect that I’d experienced has been studied formally.
Has anyone had a similar experience? What treatment(s) have you found most effective in managing your pain?