Research: parenting teens with diabetes

Those of you who have been members of TuDiabetes for a while might recall the TuAnalyze project we did in collaboration with Boston Children’s Hospital, several years ago. That same group of researchers is currently conducting a research project looking into parenting teens with type 1 diabetes, and I’d like to encourage you, our parents, to participate! This is a very accomplished and well-respected group of researchers, who truly come to this work with the best interests of people with diabetes and their loved-ones at heart.

Below is a flyer about their current study (click on it to enlarge), which you can participate in [here]
(REDCap).

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i tell my mom about this,
thanks for the link,.

@EmilyC the survey has issues. I keep getting error messages & an answer choice is being rejected, even though it’s multiple choice.

The error message says there are branching logic errors in one of the fields, & the survey will not function properly until they’re fixed.

Hi @tiaE and @EmilyC,

I am one of the researchers on this study. We have fixed the branching logic errors and now the survey is back online. Thank you for reporting it and for having interest in our study!

All best,

Dylan

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Thanks for reporting that, @tiaE! And for your interest in the survey :slightly_smiling:

I guess 13 (thir-teen) year-olds aren’t considered teens until they turn 14…

This is a very accomplished research group, so I think it’s safe to assume a great deal of thought went into the age cut-off they chose. And since we have a comment above from a member of that team, let’s ask what the reasoning was!

@Hilton_Study, why does the first page of the survey ask if the participant has a teen aged 14-17 with type 1, rather than 13-19 (the official “teens”)?

Considering the questions, I can understand the upper age limit, but not the lower. IME, the difference between 13 & 14 yr olds as far as risky behavior doesn’t differ much, & neither does the stress level of the parents. And I would go a step further & say if you haven’t discussed alcohol/drug use with your child by age 13, especially with T1 in the picture, you’re way behind.

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^^^THIS!^^^

For better or for worse, my 13 year-old Type 1 daughter knows more about alcohol/drugs/safe sex, etc. than I ever did at age 20!

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Same here. I made sure of it. Ignorance may be bliss, but it’s also dangerous.

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so, my mom is going participate, in it, i can tell, due to one thing, world war 50 happen at her house,.

she want to do it, my sister no,.

Hi @tiaE and @rgcainmd,

Good question! While risk behavior can definitely occur with all ages of adolescents, our study has a focus on high school aged students in particular. I am sure we will have other studies in the future that are more inclusive.

Thanks for your interest!

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well, i guess, my mom can’t do it,.