Maybe this should be a blog not a discussion--I'm very much a newbie.
As for most of you, the DX was a shock. I didn't know what the glucose levels were supposed to be, so I initially thought maybe 363 mg/dl was within normal variability. Uh...no. It is a long story why I got tested
at all, after not seeing a physician for 20 years. Suffice it to say that the DX was 2 days before oral surgery to remove a wisdom tooth from my maxillary sinus (long story) and then teach a class in a subject I'm still learning, all very stressful. Fortunately (particularly given
the hair-raising "rapid onset Type 1 diabetes in adults" thread), I have a really good internist who first wanted to postpone the surgery, but then instead prescribed Levimir along with metaformin. Only after reading here did I understand that that is a wise strategy if T1/T2 status is uncertain. Also, before even finding this site, this guy suggested that maybe I had "type 1.5 diabetes", something that I had never heard of.
In short, I was in a state of shock, feeling that I had been metabolically castrated and crippled. My wife happened to be mostly traveling, my blood sugar wasn't getting lower--it was hopping all over the universe. I couldn't sleep. I know things could have been worse, but I was...pretty bummed. Having had some contact with the AIDS activist community in the
mid80's-early 90s, I knew that I had to find a community of people with the condition. After looking around, I found y'all.
So, THANK YOU! I have been vacuuming up as much as I can read here for about a week. I cannot tell you how much this has done for my mental condition. You made me understand that in the world we live in, with the technology we have, living a great life is possible by USING MY BRAIN.
In fact, managing diabetes is a big experiment in quantitaive biology (what I do for a living), or maybe better to say: putting part of the endocrine system on manual rather than automatic (and I do drive a stick). You taught me that I treat myself, and it occurs to me that with cancer, *they* treat you, and they give you stuff that makes you sick. I give myself stuff that makes me healthy, and I don't think insulin is a drug...it is an acquired vitamin. I have sucked up so many posts I can't mention people by name--so many--but even if I never post here again I really had to write this to express my appreciation.
I am a novice, but I see there are adepts here. I want Tight Control
(some of you wouldn't call it tight, but I aspire to 70-140 always).
So far, I'm nowhere close. My internist told me to use the 'rule of three' to get to a fasting level of 130, and I did that by gradually upping the levemir from 15 to 23U. That was before I found this site
and became mentally activated. I asked him to do the auto-abs and C-peptide panel Monday (thank you, Mellita!), and he said 'yeah'. I have C-peptide results (see below) but the auto-ab results won't be here till next week. At this point, I want the diagnosis settled so I can get blood sugar lower on a proper basal 'n' bolus regime . Today I went from testing twice a day to six times, and its really clear I have to deal with major daytime spikes (218 after lunch..yuck).
Although I feel that the following questions could be answered if I looked more, I will be self-indulgent and ask a few:
1. I got a C-peptide result: 3.360 ng/ml (ref range 1.100-4.400). Is this high for a T1? Particularly with 23U levemir and fasting? Honeymoon or T2 insulin resistance? I know the antibody test is decisive, but I wonder how these results fit into everyone else's experience.
2. If anyone has an endo in Chicago that they are extremely pleased with, please let me know. (Uh..can we send each other messages or just make comments? Told you I was a newbie).
3. I hear people say things like '5 carbs' or '7 carbs' and speak of their insulin/carbs ratio that way. What units are these? Obviously
not grams, or 1/1 and 2/1 ratios would be causing comas.
You guys are swell.