It has been a while since I have been on here. Most of you that have read my past postings know that I have struggled with anxiety and sugar control for a long time now. In August of 2012 I had laser treatment done one session per eye, and then was put on Bromday drops which were supposed to help stabilize my leaky blood vessels after the fact. I have progressed to the point of needing a vitrectomy in both eyes as of a few weeks ago. Over a period of a couple of weeks, I lost a lot of my central vision. I am only able to measure up my insulin by zooming all the way in on the syringe with my cell phone camera.
My retina specialist won't do the surgery with where my blood sugars are running. I also just started with new insurance the beginning of April, and had to change both my endo and primary care doctor to in network providers. Unfortunately this means pretty much starting over as far as building any kind of history with the new doctors...ugh. Been a busy last month here medically.
Anyway, I had my first appointment with the new endo today. I was hoping for a pretty easy start up and some guidance as far as what needs to be done to get me to where I can get my eye surgery. I have even been considering a hospital stay to get myself under control for this. I left the office somewhat disappointed. I met with the nurse first, and she went over my meds and then my history. I told her about my Humalog and Lantus, and when she asked for my history I told her I was Diabetic. She asked if I knew which type, and when I said Type 1 she said, "but you take insulin?" Didn't really make a great first impression, but I let it go figuring once I saw the doctor it probably wouldn't matter that the nurse seemed confused.
The doctor briefly went through what was going on, and when it came time to talk about what to change to try to get a handle on things, some of the suggestions didn't sit so well with me. As far as food intake, she wanted me to start towards what sounded to me like a low carb diet. Granted my diet isn't great, but with everything else I have going on with eyes, anxiety, and sugar control problems steming from the anxiety, I don't feel like the diet change is something to worry about right now. Possibly further down the road, but not now. I also don't know how I feel about low carb. I have only read some minimal information about it, and would want to learn some more about it first.
The other thing that I was uncomfortable with was she told me to forget about formulas and to take x units at breakfast, x units at lunch, and so on. She did give me what I suppose would equate to a sliding scale for corrections, but she wanted me to stop carb counting. I have counted car4bs for the last 15 years now, and was on the fixed dosing before that. To me this seems like an old way of managing this disease.
I am leaning towards looking around more for a new endo, but am really at a point where I can't have this process take forever with needing my eye surgery. Thoughts?
Also appreciate any feedback on the vitrectomy itself. I have read all of Robyn's post from her procedure, and I understand at the very least to expect a fairly slow recovery after the fact.
If you made it this far, I appreciate you taking the time to read all of this.