Lets not arguing too much on types again guys! We are all diabetic here. I respond to posts in the Type 1 forum by accident sometimes and I will often see people posting stuff under âGeneral Diabetesâ that should go in the Food section or the Games section.
But I do agree that the âCategoriesâ and âForumâ sections are set up queerly. I remember when I first joined that I could NOT find how to put a post under the Exercise or Food, Diet categories because they donât show up under the main Forum Dropdown tab. You have to clikc on the main forum tab and than change that Categories drop down menu to find those forum.
I agree that part is NOT set up very nicely and as an ex-programmer that kind of bothers me. Also because I think people would utilize those categories more if they knew where to find them. Otherwise, people stick everything under âGeneral Diabetesâ that doesnât seem to have a category (even though it doesnât but you canât find it!)
I would like some programming changes to this site too - some of you might remember that I crabbed about security a month or so back. I want some more privacy options for the blogs and profiles.
In order to get there, you have to go to the Main Discussion page and than on your right had side a bit down will be a dropdown box called âViewâ. Change it to âCategoriesâ. When new page refreshes, scroll down and you will see all those extra Categories that we donât auto matically see when we log in here. Took me weeks to find these things.
This may be a very old question, beating a dead horse, but Iâm still new to TuDiabetes. I noticed that there is no ICD9 codes for type 1.5, and any other health site like EverydayHealth which has a diabetic doctor regularly answering questions, wonât use the term 1.5 or even describe a condition in which Type I has a slower onset. It is worrisome that the medical community isnât going to look for Type I if convinced youâre a Type II. And itâs not limited to just diabetes. I learned that clot busters for strokes are frequently unavailable and the ER staff may even say ânever heard of it.â How does this happen? Docs not keeping up with research or research not clarifying the situation(s)?
The reason there is no ICD9 for 1.5 is that1.5 really isnât a clincal classification. 1.5 is autoimmune diabetes identical to type 1. SO the ICD9 for Type 1 would be used. The 1.5 distinction only really explains the slower onset of the same disease.
I see the reason there is no code for LADA (I donât care for the 1.5 term as it implies we are halfway between type 1 and 2 which we are not) not being that there is no need for it. LADA, while of course a subset of Type 1, presents differently and it needs to be described and named so that it is recognized and correctly diagnosed. If the perceived characteristic of all type 1âs is that they are children or adolescents and present in DKA than those of us like me who were diagnosed at age 58, not in DKA, and who manage for months or even years on oral meds, will not be recognized. I believe there is no official designation of LADA because the nature of the medical community, especially in the U.S. is that it is very slow to change and to adopt new information and diagnoses. LADA has been known about for years. But most of us are not correctly diagnosed. Many medical professionals have long recognized that there are diabetics who donât fit the traditional profile and that their are adult slow onset type 1âs, but they cannot use the term âLADAâ because it doesnât yet exist to the powers that be.
If LADA were truly identical to T1D, then you probably wouldnât care that there are no separate resources, you would feel comfortable simply as a type 1. Your symptoms may be identical now to any other T1D, but were they when you were first diagnosed? If I say âIâm a type 1â for simplicity sake and someone cares, they say, âhow old were you when diagnosedâ My answer (58) would bring on new questions. Or if I explain that the first 1 year + after diagnosis I took oral meds only and had perfect blood sugars. Calling myself a type 1 and saying that would get odd looks.
Hi Paul,
Any suggestions you may have about ways to improve the siteâs usability and setup are more than welcome. Donât hesitate to email me at manny AT diabeteshf . org.
Zoe, Iâm with you on the 1.5 term. I am fine with LADA because it is simply distinguishes it from Juvenile diabetes with that distinction being age of onset. The 1.5 makes people think itâs other than Type 1 and that can lead to a lot of confusion, I cannot tell you how many people have told me they honestly thought that a Tyoe 2 that goes onto insulin is a Type 1. So many people do not understand that type 1 (including LADA) is an autoimmune disease.
We are all diabetic here. I respond to posts in the Type 1 forum by accident sometimes and I will often see people posting stuff under âGeneral Diabetesâ that should go in the Food section or the Games section.