Confused, frustrated, dejected

As some of you know, I was diagnosed with Celiac Disease back in May. At that point, Doc said to concentrate on learning how to deal with the gluten-free diet and we’d “see what happens with the sugars”. She hinted that she thought that my high-ish sugars would correct themselves once I stopped eating the wheat, barley and rye products that were causing my Celiac symptoms.

She was right…at first. My AM BG’s stayed consistently in the 90’s and I was feeling pretty good that “fixing” my diet to accomodate the Celiac was having a positive effect on my sugars, maybe even to the point of dodging the pre-diabetic/diabetic bullet. I also wasn’t experiencing any feelings of being low AND I dropped 7 lbs. in the process!

Then I noticed my AM sugars creeping up again despite no additional changes in my diet. I talked with Doc about it and she said the initial drop might have just been a “honeymoon period” and that, now that my body had adjusted to the gluten-free dietary changes, the sugars were also “adjusting” themselves…in other words, my honeymoon with completely normal sugars was over! Oddly enough, I lost an additional 1.5 lbs. during this time.

Then, over the past week and a half, I’ve been having problems feeling low. I don’t currently take any meds so I’m not sure what’s going on. I haven’t been ill, my work and exercise schedules haven’t changed. Nothing’s changed except the nasty feelings I’m having. I don’t normally test during the day (occasional random and that’s it) but yesterday I checked my sugar when I was feeling bad (about an hour or so after lunch) and it was 85 - still within the normal range but most definitely with symptoms of being low.

Since the low feelings have been going on for 6 or 7 days, I decided to eat a gluten-free lunch but not pay any attention whatsoever to carb content, sugar content, etc. I tested before lunch and I was at 101. I ate my lunch of a 6" corn tortilla topped with strips of grilled chicken, chopped tomatoes, chopped green peppers, chopped onions and a nice sprinkle of shredded cheese. I also had a small serving of refried beans and a small cup of “standard” (sugared) chocolate pudding. Within a half hour of finishing my meal I could feel a low coming on - hot, sweaty, nervous, shaky, bad headache, couldn’t concentrate, nauseated, felt like I was going to pass out. A quick check put me at 84. I tried to work through it but couldn’t stand the symptoms any longer after another 15 minutes so I grabbed an 8 oz. regular soda and chugged half of it. 15 minutes later I still wasn’t feeling any better. In fact, I was feeling a bit worse so I checked again. Even after downing 4 oz. of sugared soda I was DOWN to 80. I finished off the soda and ate a bag of Fritos. Another 30 minutes and I was only up to 89 and still feeling symptoms, although not quite as bad. I ate a few slices of pepperoni and a stick of string cheese and that finally brought me up to 98 and I felt better.

Before supper, I tested again and was 89. Since my sugars haven’t been making much sense lately, I checked again 15 minutes after finishing the meal. I was at 102. 15 minutes later (30 min. after eating) I was feeling weird again so I tested yet again - 83. I decided I was just going to tough it out and not eat anything more unless I was in very real danger of passing out. At the 1.5 hour mark I was feeling OK and decided to test again - 114.

While I’m thrilled that I’m not having sugars of 140 and 185 again right now, I’m not particularly thrilled to be having these awful low feelings, either.

Why am I feeling low in the 80’s when that’s supposed to be normal? Why were my sugars consistently staying in the low 100’s, even when gluten-free, and now all of the sudden they’ve dropped and I can’t get them up, no matter what I eat or drink, to where I feel OK? Why are the sugars seemingly bouncing all over the place? What does it all mean for my chances of developing full-blown D?

You may be feeling low if you’re body is used to having slightly higher blood sugar levels. I know this because if my sugar is consistently low, I stop getting symptoms. I read that keeping your blood sugar slightly higher for a few days will trick your body into producing “low” symptoms again. Therefore, your body may just not be used to 80 right now, so you’re producing “low” symptoms. It will go away after some time. My blood sugars bounce, too. :slight_smile: It’s very frustrating!

Yes, as Kim said, suddenly improving your blood sugars can make normal levels feel low.

This should fade in time-- if you are still feeling in a week or two, I would definitely call you doctor. Also, it would be good to keep measuring often until you are over this feeling.