I’d like to first of say I don’t have diabetes. But I have been dealing with horrible hypoglycemic episodes since I was 11 and I feel like maybe some could relate. I’m 20 now. The first time I ever brought it up was with my second Gastroenterology doctor. I never caught it under 70ml. I just dealt with it for years later. My gastro eventually went to PCP and I went to someone else. I brought it up again at 16 with my new gastro. He checked my A1C which was normal. He sent me to a neurologist who wasted my time and said it was anxiety.
I’d like to mention I’ve also been to a endocrinologist for goiters and nodules on my thyroid that went away. Never had levels that were off. I went to another endo for an unrelated issue. He is about and hour and a half away.
My PCP sent me to a dysautonomia doctor after some battling with my high heart rate. My second gastro brought it up at an earlier time. She’s also an hour and a half away. She did diagnose me with dysautonomia/POTS but I did pass the tilt table test. She diagnosed me based on my history.
I finally went back to my PCP for my episodes. She ordered a OGTT. My fasting was 83, half hour was 185, one hour was 129, two hours was 67. My ALT was also high at 42. They redid labs did ultrasounds on liver, pancreas, right kidney, bile duct… All were normal as I was told today, and I guess my ALT was too. I don’t know they didn’t tell me much other than everything was normal.
I’m just genuinely frustrated and emotional about this. I want to cry. I already have so much stress on top of this as a 20 year old college student. I work part-time in a job that was not accommodating till I switched departments a week ago. During my shift, I’d have several days a week were I’d start feeling low and could not get out till my break. I couldn’t even drink water in front of customers. I can hardly predict it. Some weeks it won’t happen. I’ve trained myself to scarf as much as I can before doing something that requires any exert, or I know won’t be a place to easily get snacks.
I’m so close to breaking down. I just want to not deal with this anymore. I don’t want to sound like I’m jumping ship because I don’t have diabetes and hardly any evidence to support my struggles but I feel a CGM would genuinely improve my quality of life. I’m tired of never knowing when it’s going to drop. Or having to stop my life because it dropped and now it’s low and I had no idea it was dropping.
There are tears. I want answers. I want prevention.