Your post really hits home, @Sally7. It’s taken me a long time living with T1D to realize that the expectations created by professional diabetes medical providers can damage your mental health. This compounds the problem of managing well a difficult metabolic disorder.
I don’t fully fault the medical providers but their blind spot regarding the psychological/emotional aspects does materially impact our health. Too many (not all!) providers off-load their personal responsibility by seeing us as “non-compliant” with their treatment plan. They fail to see that their ideal treatment does not work for everyone and the individual variations most of us observe. They don’t get the joke, “the definition of diabetes insanity is doing the same thing over and over, expecting the same results!”
Now I know there are enlightened and sensitive medical practitioners who see their patients as both physical and psychological beings. Unfortunately, too many don’t understand our needs to be treated holistically.
Congrats on persisting to bring your diabetes treatments into a more realistic sense of expectations. It’s been my overall experience that the biggest treatment breakthroughs only came to me due to my own experimentation, persistence, and quest for my diabetes reality.
I think it’s tough for our medical providers to gain empathic insight since they don’t personally deal with diabetes all day every day. The do need to be aware, however, of what they don’t know! They also need to respect the knowledge, experience and truth their patients hold. I fear they see us more as subjects that need the doctor’s sensibility impressed upon them. The truth of the matter does exist but it lies somewhere between the doctor and patient reality. Bridging that gap is the challenge.
We are all good enough! No diabetes test will ever be the measuring stick of our worth as human beings. That’s an insidious trap you fell into Sally and I’m glad you worked your way out. I just wish there were more and better recognition of the entire package of problems we face. There are likely many more people who never resolved the conditions that you did.
Thanks for an articulate insight into this important aspect of managing diabetes well!