Oh, yea I feel you. I went 52 years and boom Club 1 in ICU, DKA. All I cared about before was what food tasted like. Now I read stupid labels order side salad instead of fries!!! Suck is an under statement!!! The other thing thing I am not to happy with was that BS they gave me when I was dx’ed. Normal life, HA what’s normal about being a frickken dart board/pin cushion. LOL
How about control, For me it’s like walking a tightrope while riding a super roller-coaster!!! One good thing Club 1 is great for us OCD people. ROFLMAO
Yes, I am there with you girl!!!
Lil MaMa, I’ve been at this for 52.5 years. It gets me down every now and again, but, I have accepted the challenge that has been presented to me. It does get out of control at times but WE (you and I) need to take a step back and relax. This is what I tell my daughter (dx’d 5-4-06 at the age of 23). Every day poses a different situation and we have to deal with it. Keep your cool.
I have an appointment in 2 weeks, it was the “soonest” he could get me in. I rode the bike for 45 minutes and my sugar came down to 125 but I did make a note on my bg and diet log what I ate how many carbs were in it what my bg went to and that I showed ketones and my exercise afterwards. My Husband just feels bad for me because I’m struggling.
Don’t forget to have your name put on the waiting list, people cancel all the time. If you eat low carb, you will generate ketones, usually a 240 after a meal is not enough to start ketosis (at least the kind that reflects DKA). You still fear high blood sugars. If you are 240 after 2 hrs, that is “actionable.” But just cause you go to 240 after a meal and come down, that is “not too shabby.” I know it sounds harsh, but if you really want to show your endo you current glucose intolerance, you need to just “buck up” and work through your fear of high blood sugars. Eat the “stupid” ADA diet, test your blood sugar at 2hrs and write down the number, even though it is high. A few highs won’t damage you and in the end, getting the attention of your endo now rather than some months or years down the road is what you want.
Small ketones themselves are not going to hurt you – drink a lot of water to flush them out. HOWEVER, you should keep an eye on the ketones – if they start going up, and you start feeling ill, particularly, sick to your stomach, and your BGs won’t come down, you should go to the ER – you don’t want to escalate into DKA.
Ketones are a GOOD reason to see your endo sooner rather than later – you might need to insist to the secretary (who knows nothing, anyway) that this is quickly becoming an emergency, and you HAVE to see the doctor immediately. Or else you will end up in the ER.
They should be able to fit you in – doctors know emergencies happen! If they don’t, and the ketones persist, then at least you will have a record of it if you go to the ER. Not the best solution in the world; it’s expensive, and frustrating, but at this point, you are being seriously medically neglected.
I am going to experiment a little more with carbs this week while my little boy is at Grandmas house and I will be calling asking if I can get in earlier or on the cancellation list. Friday I had a 6’ turkey sub from Subway and my 2 hour bg=307 and my 4 hour bg=255. I exercised after the 4 hour mark to show my bg does not come back down. Thanks for all of the helpful advice from everyone you are all so supportive and informative.
Just one more question…so you say short term high bg (like a month or so) isn’t long enough to do damage but does it cause you to be more insulin resistant when your bg is high like that?
Also, was this one time of high bg enough to prove a point or must I torture myself a few more times??lol
How is your half a unit with 30 carbs per meal going? Have you started??
That’s the game. The sub was 47g of carbs from the subway site. That is what I am talkin about. What I would do is given your response, eat 2 or 3 more specifically controlled 30g meals and show this was not just a single issue, but that have lost your glucose tolerance. You don’t need to do 45g again. And while you think that you are hurting yourself terribly with these meals, it is over time that the damage accumulates, there are people here who will tell you their blood sugar was this level many times. You get somewhat insulin resistant at higher blood sugars, but the effect wears off when you restore normal blood sugars. This is about making a thoughtful short term demonstration of your actual glucose tolerance so that you can get the consideration and treatment you need.
It just astounds me that your doctor won’t fix this more readily. I think that if you went to the ER b/c your BG was 307, maybe left out the bit that you are seeting a doctor who seems to be an endork, they might rx you a bottle of insulin to cover you until you could see the doctor? It probably really depends where you are, it’s probably even odds they might try to call your doctor but to me, that is really unaccptable and you should bring some sort of truncheon to your next visit in case he doesn’t fall into line!! Grrrr.
I agree with BSC that it probably feels very yucky but that you can ‘clean it out’ if you can get your doctor off his butt. I also agree with Lynne about drinking lots of water when your BG is elevated, except that probably isn’t much fun when you have to work it off? I always drink a ton of water any time my BG gets > 200, perhaps because I am paranoid?
Was the Sub @ least tasty?
lol yes the sub was tasty I did not eat all of the bread however I only ate I’d say 30 carbs worth of the bread (I took about 1/4 of it off) I felt very sick however, I’m sure my body is not used to eating these types of things anymore. I even just ate an apple with peanut butter…AN APPLE can you believe it!? I’m gettin brave haha Thanks BCS and acidrock for the advice and I will be calling my dr tomorrow telling them my appt isnt until feb 16th but everytime I eat I go to 200 even 300 and I need to be seen sooner! Yes trust me I drank a lot of water…I always do I’m ALWAYS really cottonmouth after eating.
Another reason I tell you to eat several meals like this is that eating low carb makes you carb intolerant. If you eat very low carb for a while and then just have a sudden high carb meal you will display terrible results. That is why they tell you to eat “normal” amounts of carbs before an OGTT, and why I suggest you do a number of meals. Don’t let you endo have the opportunity to just say this was a quirk.
I think the first couple of years after being diagnosed is the hardest, but then u have to look at the now and decided that u r not going to let it rule you…first talk to your endo and nutritionist about things you like to eat…u can have those things still but in smaller amounts and bolus to have them. and exercise is part of all diabetics lives…make it a time to enjoy not a time to burn carbs…even I still get down and very frustrated after 32 yrs of type 1…and all these feelings you are having is normal believe it or not…yeah I feel ya on the morning thing sometimes I can have a high BS which makes me really mad but each diabetic body is different and reacts different…some even have high blood sugars with stress and anxiety…I learned how my body would react to certain foods even b4 I got on the insulin pump…that is the amazing thing about insulin shots(YUCK) but to eat something u liked b4 try small amount of it and bolus for it…my opinions though as there are many here that is the good thing about TUDIABETES…
I recall that cottony sensation although I have not experienced it for years!
I am not a huge fan of Subway since for what one of those costs, I can get a large pile of tastier meat & loaf of bread @ the grocery store and eat smaller sandwiches for a week. I went there once w/ MrsAcidRock and junior and sort of embarrassed them because I did not know “the drill” and pretty much ignored the person asking me “What bread” and said “I want a [whatever] sandwich with tomatoes, peppers, dressing, lettuce, easy on the tomatoes” etc. to which the person replied “what bread do you want”
high blood sugars give u that cotton mouth yucky…I grew up eating like 6 small meals a day even b4 they started this carb counting stuff…omg subway sounds good though lol…I had my jaw wired shut for 12 weeks so everything and anything still sounds good to me…omg if u need insulin right now and ur doctor won’t give u one good gawd let me know and i will send u a bottle if it is lantus or novolog…I had a doctor like that omg they took me off my insulin saying I didn’t need it no more so well I ended up in the ER with a bs of 500 and got me a bottle of insulin and left that doctors office for good
Yup, this is EXACTLY the kind of thing you have to show your doc. I know it feels yucky, and you don’t want to go on like this for a long time, but you’re proving a point. I agree with brian that you have to do it more than once, to show it wasn’t a fluke, but that you really do not produce enough insulin to control your BGs to a reasonable level.
And to answer your question, it would take months or years of BGs like that to actually do irreversible damage to your body. Many Type 2’s go up gradually, and walk around with BGs like that for a very LONG time (you don’t feel yucky when your BGs rise gradually), maybe YEARS, and while some of them do have complications, many don’t. In your case, you might have to endure high BGs for a few weeks at most, and many other Type 1’s have done so without any permanent damage.
High BGs do increase insulin resistance, but it is temporary, not like the insulin resistance that obese people have. It goes away as soon as the BGs come down.
Tomorrow, being Monday, call your doc’s office and insist that it is an emergency. And like someone said before, be sure you go in with a high BG.
Good luck!
One of the Type 1 bloggers, I think Kerri Sparling, calls it “sweaters on her teeth”. I think that is SO apt! I call it my tongue sticking to the roof of my mouth. MOST unpleasant!
How high should my bg be when I go in??
Also, the insulin resistance goes away like later that day when my bg goes down or over time? Thanks for being so helpful! 
I am still incredulous that you are having to work out 3x/ day all the time.
I studied Tae Kwon Do for 5 or 6 years and got to the point of teaching a little bit. I’ve also ready at least 5 but maybe more like 10 running books in the last couple of years and none of them advocated working out that frequently. If you run a marathon, you are supposed to take at least a day or two off to recuperate!! High School Football players do “two-a-days” in the fall to get ready for the season but they don’t go home and work out again after the second go-round so they can eat.
That is just wrong and the doctor should be concerned that at some point you will injure yourself. All the books recommend taking at least one day/ week off and very strongly advise you not to train too much. That is very basic and if he claims “oh, if you hurt yourself exercising, you should see an orthopedist or a neurologist or some other specialist” he is even MORE of an endork!!
I’ve also seen diminishing returns as I’ve gotten in better shape? The more I run, the less it impacts my BG from which I’d infer that whatever you are doing (bike I think?) you are probably pretty freaking awesome at it but may see yourself develop what would amount to “exercise resistance” if you keep up that pace. It is very sinister to me that the doc isn’t 1) aware of this 2) concerned about this 3) recommending a different course of action for you. I love exercising but if I had to do it instead of insulin, I don’t think I’d last very long? I hope that you can pound your way through his nurses and get stuff fixed up.
yeah I was told to exercise every other day so u can rest in between…so much emphasis is based on how one looks and now how they actually feel…society in most is negative I think looks aren’t everything…I think it is one health overall that is the msot important whether u look great or not…not sure if my wording is very good hope so though