Have you ever believed you were cured?
A few days ago I ran across two incidences of people who at some time after diagnosis felt they had been cured. One gentleman simply went off his medication after he had been using insulin. He reported that he was willing to take insulin but when the doctor moved him to metformin, he felt he was cured and stopped using diabetes medication. He reported that he felt better for a bit but was gradually persuaded to use diabetes medication again because he noticed his symptoms returning. The second case involved a 20+ year old male who took insulin for a bit and after a few days post diagnosis he convinced himself he was ‘cured’. Obviously his blood sugar was in check with insulin and he, in spite of his doctor’s warnings, went off insulin and rapidly returned to the hospital.
I wonder how prevalent this phoneme is in the diabetic community. For me I never ever thought I was or would be cured. When my doctor spoke of the 5 year cure, I knew that those 5 years would pass several times before there was a cure and I never believed it would include me. For me my mind set went to the extreme and dwelled on the negative effects of having the disease, I never once thought of the positive fantasy of riding myself of it.
So I read through some diabetic literature and I only found two sort of reference which were brief: the first about children and the second about minority adults. First, was the child with diabetes who believes that adults can fix things, and who sometimes believe that once mom or dad arrive, they will be cured . That is not a question of ‘I was cured’ rather a question of ‘I will be cured’. These statements are very different. Certainly young children so often expect fathers or mothers to have magical powers and as such once mom or dad arrive I will be cured.
The other reference is about minority populations who may feel they were lied to about diabetes; therefore there is no need for a cure. The article postulates that disease may be viewed, in some minority populations, as a way to exploit persons of minority races, and the fact that some people might call medicine a pseudo-science used to scare them. Though the article does not speculate on the cause, except to say it is a common ethnic understanding of medical science.
One can certainly understand the issue in the African American community. You only have to look at the violation of rights by the purveyors of the Tuskegee Syphilis Experiment conducted between 1932 and 1972 to understand the terrific mistrust that may be present in the American African American community. Still this is a statement of a lie being told at diagnosis not a belief in a cure.
So in one day I found two people who felt at least for a bit they had been cured of diabetes basically in a miraculous fashion. Both of the gentleman exhibited proper behavior to make me believe they were of average to above average ability and each gentleman has been reliable in the past. One had a pump attached and the other reported he was currently using metformin.
I have met a diabetic who believed so much in prevention that he was willing to use a crack pot idea to not use insulin. I felt sorry for him, we spoke at length about his use of this product and he continued doing so despite my caution against doing so. He eventually died pretty soon after he told me of the miracle nature cure he had found. But, even he never claimed he did not have the disease, in his case type 2. Instead he was hell bent on avoiding the economic (he was trying to beat a required annual physical) and social pressure of using insulin.
So what has been your experience have you ever, even for a short period felt ‘cured’? And if you have at what age might that have been? This is not a survey scientific or otherwise. I am just really interested. Like I say I have never felt cured. Now wanted to be cured? I have wanted to be cured. But never for a second have I ever thought I have been cured. So my question, if you have or have not ever felt you had been cured, what tended to cause that opinion?
Was you thought of being cured related too feeling better when you started insulin or other diabetic medications? Was it rebellion and the belief that you could or would forsake treatment and the consequences be dammed (I might have fit in this category)? Or was it something I have not contemplated? This idea of thinking we are cured might be a subset topic of diabetes, something people have not really explored. Scientific paper anyone? Or am I missing the existing published literature?
*Note: (I am not referencing the articles because I lost them (and could not locate them again) when my internet died before I got them into endnote, my apologies to the authors)