How do you learn to live with diabetes?

I have type 1 diabetes. When i found out about 3 years ago, everything was fine. Now after 3 years i was depressed, everything got worse, my blood sugar was constantly high. Once i have pulled myself out of depression somehow, i keep getting upset from time to time... mostly when i get low sugar.. i know i just have to learn to live with diabetes and face all the emotions it brings. But how do you do that ??

Please provide some advice if you can

I figure insulin is a pretty "hard" drug that can mess you up. For a few years, I'd think "hmmm, I'm getting really depressed...I must be hypo" and not think of it as much as me "being" depressed as a "wave of depression caused by drugs". It may have been some of my motivation to work harder to get flatter BG results?

hmmm i just need some advice of how to learn to live with it.. people dnt really understand what it does, what it makes you feel,, i dont know anyone in my borrow that has diabetes and its hard to explain to pople how i feel

Yes, it does have it's ups and downs but I've found that learning as much as I can about diabetes and the type that I have has helped me. I am new to Tudiabetes but if you look around there is a wealth of information here!!

im new on here too.. i thought if i sign onto something i migh find people that understand me but i just dont get it... i used to be smiley all happy girl , now it just changed, maybe because i understand diabetes more.. ah i just dnt know

Hi nat, i am not a diabetic but my son is and he struggles as you do, but i would agree with the last poster that knowledge is power, and handling one day, one decision at a time is best, as well as focusing in on other positive aspects of your life. if you are looking for some serious inspriation check out one happy diabetic here and his video on how being a diabetic made him a better person, a very inspirational young man. best of luck, you are stronger than you give yourself credit for. you are so much more than your diabetes! amy

I agree and, since I've started hanging out here, I haven't really felt too odd about not bothering talking to "straight" people about it. If something comes up, I can usually find a thread here or whatever? I don't look at it as "the diabetes" making me feel down though, it's a symptom of blood sugar being off that I'll feel low/hypo/bummed or hyper/ slushy. If I can avoid highs and lows, I can make myself feel much better, which is something to feel good about, I think?

As much as I hang around Tu (computer in kitchen...), I think that a big thing for me has been to find other interests, whether it was partying and rock music (80s/90s-200uh2 or so?) back in the daze or martial arts (2004-5-2009) and now running/ lifting. All of that stuff required a certain amount of management to participate (I only tried to tune a guitar once while I was hypo and it was a complete mess, w/ echoey 'beat tones' all over the place so I drank some chocolate syrup and got through it...) that helped me sort of play down diabetes. The whole exercising thing sort of requires that I get stuff pretty much in order a couple of hours prior to the activity and then keep an eye on it. And, other benefit have been paying more attention to eating better because, well, running at 44, I sort of have to "fuel" properly and feel much better, in terms of muscly soreness, if I've been eating spinach, broccoli chia seeds, etc.?

Admittedly, my BG still sucked this AM and now I'm rattling around in a "nosedive" but it's all part of the plan...heh heh heh...

well i have been happy in my life,,, its just recently it all hit me... cant realy talk to people about this as i feel like cryin all the time... sometimes i just think when i get low sugar.. why dnt i just leave it all knowing the consequences as being unconscious if low sugar not treated.... i know soo much about diabetes... i just cnt help myself with learning how to deal those strong emotions that it constantly brings... Maybe i just cnt accept the fact i have it

I think we would all like to learn how to live with D. I am a T-1 for the past 13 years. I guess I am lucky b/c I was Dx at age 55. I still get depressed at my ups and downs. You just have to take it a day at a time, and be glad you have a condition you can control somewhat. I have other medical problems that I cannot control and would trade having them for D. Being able to rant on TuD does help. We do understand what you are feeling. Take care. Cat =^..^=

Good Advice there Cat. Nat we all have a severe learning curve but please just let the D know who's boss. Hard but sometimes u just have to do it. I've been a Type 1 for 38 years now, (diagnosed at 10) and it's just became a part of my life. I honestly can't give out much advice to u but belive in urself! YOU CAN DO THIS!!!

Hi, Nat. I, like cat was diagnosed later in life which I do think makes it easier in some ways.

My thoughts: First of all, don't beat up on yourself because you used to be cheery and happy and now feel sad at times. It's an understandable sadness. We all mourn in our own ways and on our own timetables (yours is coming 3 years later!) And it is mourning: for the life you used to have before D. But that doesn't mean your new life will always be miserable! First of all you need to make sure your blood sugars are as close to normal as much of the time as you can. You say you were constantly high? Have you solved that problem? If you haven't, then do get "Using Insulin" by John Walsh and learn to tweak your doses for best management. Not only having less highs and lows will help your mood but so will feeling empowered to manage your own Type 1.

My other suggestions are to make sure you are doing the other things in your life that make you happy. Don't neglect them to focus on your D! When you were depressed you probably let go of doing the things you love so take them back! I find that if I don't do the things I love, then my life is all about D and that's a pretty boring life!

You are talking to us which is great but it isn't enough. See if you can find a Type 1 Support group in your area, and if not start one! (That's what I did!) It really helps to talk in real life to others who truly understand.

Lastly, you said you pulled yourself out of your depression, which is great, but it's sometimes hard on your own. If you find yourself drifting back into those feelings don't hesitate to see a therapist.

Glad you're here
Zoe

Hi Nat, I was diagnosed when I was 27 and I went through a phase where I was angry because I felt like others my age were out there living life without having to deal with diabetes. Then I woke up and realized that if I took good care of myself I could still enjoy all the things I enjoyed before I was diagnosed.

So I would suggest trying to remember all the things that you used to love to do the most before your diagnosis - dancing, singing, traveling. Find your passion and focus on the things you love to do.... at the same time taking care of yourself so you can enjoy those things.

We're here for you, nat. :)

Hi Nat: I would say that grieving takes a long time, longer than most of us would care to admit, and it sounds like you are being hit by some delayed grieving. I would also say that highs and lows, the rollercoaster, are horrible and cause depression. So if you are using every tool available to avoid highs and lows, such as a pump and CGM and low carbing, then that will help. I think that finding community can really help, online (here at TuD) or a support group as Zoe suggests.

Over time, I have come to a place of acceptance about my T1 diabetes. Yes, there are times when it just sucks, but overall I have come to some place where I just accept that this is my life, and I barely remember life before diabetes (LBD). The tricky question is, how does a person get to that place of acceptance? Maybe this is what you are asking?

Dear mellita maybe this is a question of how do i accept diabetes, and iwht diabetes i still do things i love but will i always get upset from time to time?? thank you all for the honest advise. Zoe i was thinking of going to the therapist but i was scared it will overtake me and it would an ongoing process which i dnt really want. Regards insulin my sugar is better i feel like, dnt have as hih sugar no more but when i told my doctor whats happening,, she didnt really understood me , i felt like she didnt even care !!!

Thank you everyone for such a support.. and i havent had a chance yet to meet someone thats in my area and has diabetes.. i met type 2 diabetic but its not the same.. im hoping to meet a teenager with similar issues like me...

Today i went out for a meal with my friends... gt to the point everyone was having a dessert.. it always hits me when i go out for a meal ec=veryone gets dessert... not me :/

Nat, yes you can have some dessert, share a dessert with your friends or family, just have a little. It is more carbohydrates that you need to avoid, so keeping your portion small allows you this treat from time to time. I am T2, but depression is part of this too, try to focus on the things you enjoy rather than the difficulties you face with diabetes. It puts things into proportion.

Yeah. D can be rough. I've been T1 since I was a little kid. I recommend you carry a monitor + strips in your purse. Whenever you feel rotten, test you BG. That way, you know if you're getting low, or just naturally unhappy. I often confuse 1 for the other.

Also, remember that all of the lessons that D forces you to learn would serve you well in life, as a non - diabetic; Like being resourceful and being able to handle crisis, and having friends that you can count on.

i carry evrything with me.. and yes it kind of prepares for the while wherew im that young adn experienced that much

.You also could get an alternative to dessert so you don't feel left out, such as an espresso. Most desserts are both high in sugar and carbs and with such fast acting carbs can be hard to bolus for accurately. It's up to you to decide if it is worth it for you. Many of us have found certain foods that are just not worth the highs and lows.

As for the therapist, Nat, you have to decide what it is that will help you. Going to a therapist doesn't mean you're "crazy" or you will need to go forever. It just means you need a little more help right now. You can talk with the therapist as to what you want - such as to see someone for 4-5 sessions, work on certain issues, get evaluated for medication for Depression, etc. There is no one way.

I'm not a huge dessert monster, a I prefer fried/salty/ hot sauce > dessert but the big problem I notice w/ desserts is how concentrated the carbs are? Particularly eating out, it comes in these massive piles of tasty glop that are probably more carbs than dinner and appetizers and drinks beforehand?

Nat,
I think I have a pretty good idea what your feeling. For starters, I know for me when my sugars are off, or moving around a lot, that can tend to leave me feeling depressed and without energy or any motivation to deal with the D. I've been fighting with that again a lot lately. I know I am dealing with depression at this point again, as I've been here before and recognize the signs of it. Even so, I have put off getting help for it for too long. Basically all that to point out that if you truly have overcome the sadness or depression, great, but if not, don't be afraid to look to therapy and possibly medication to get through it. It really makes going through the daily diabetes tasks much more difficult, and there's no reason to suffer with it.

As far as how do you learn to live with it, others here may have more insight into that than I do, as I was diagnosed young and honestly don't really remember life before diabetes. I'm not sure anyone ever actually accepts diabetes but rather accepts that there are certain things we have to do so that we feel well and in order to avoid complications later on.

Hope that was at least somewhat helpful.