I was told in 1990 that a cure was within 10 years, so a little bit of a back slide from 1983, I guess. I had t-shirts from JDF walkathons in the 90s that had the slogan “The decade of the cure” or something along those lines, printed on them.
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I would cut Chemstrips into fourths or even sixths depending on how tight things were money-wise.
I was diagnosed in April 1971! They told my sister and I (we’re both diabetic) we only had about 20 years left. Funny how wrong tgey were thank goodness!
I’m so sorry your experience was so brutal. And thank goodness that pharmacist was there to help you understand. I admit, there are some things I just won’t do now because of my ‘fear’ that something could go wrong with my diabetes and it would be impossible to get help say on a mountain trip in Jasper, Alberta. I was in a study last year put on by the University of Alberta that focused on the long term exhaustion of T1D. The man doing the study said that many T1Ds broke down and wept when they talked about their diagnosis. It is or has been traumatic for many of us I think. As far as education system learning programs, that is a smart, smart item that would improve so much for so many. Lots of room for improvement in all areas of T1D.
When hey told my mom and dad i would about 2o years, my dad said why so long?
I’m remembering the days when the portable glucose meter’s cost was the main determiner of when I could get one. Then the companies realized that it was the test strips that got them the profit. There was a short period when it was lovely getting a rebate for the cost of the meter. How naive! LOL!
Isn’t it ridiculous - pharmaceutical companies making enormous profits on products T1Ds require to survive. Enough to make boycotts happen even though we cannot say no. Boo hiss on them.
When I got dx’d at age 28, my dad said “Diabetes, huh? Makes you impotent.”
Thanks Pop.
I’m late to the party here, but the second picture, with the list of reactive ingredients sent me chasing info on horseradish peroxidase. I had no idea. One more reason to love this root.
pstud123 - You did have a rough introduction to T1D. And it is true a lot of medical professionals don’t understand T1D and modern treatments.
This has been discussed before, but I personally think we should all try to find an Endo who is up to date and tracking the latest technology. I know in some places those are just not available, and of course insurance can be a problem too.
I like my primary care physician, who does a good job of keeping me healthy overall. He would like to treat my T1D, too, but he only seems to know what he was taught back when he was in medical school. He was fascinated when I told him about CGM. So I have explained I want the Endo to take care of my T1D, and this has worked out well.
T1D education - I was diagnosed in 1965. In those days, I went to the hospital for 4 days so they could find the right insulin dosages and simultaneously educate me about about T1D and what I needed to do, essentially, to be my own nurse. I was also told about the book “Diabetic Manual for the Patient” by Dr Elliott Joslin. That got me a good start not just at what my treatment role should be, but at having a positive attitude about my new disease. Looking back, there are very few things I have been unable to do because of T1D and being insulin dependent. I have felt no restrictions caused by T1D. At all.
At age 50, my wife and I decided to get a showdog. I took classes and began to learn how to handle my own dog in the ring. Our favorite breed competes in the Herding Group, where movement is critical. So here I am, at 78 years of age with T1D for over 57 years, competing against good dogs with professional handlers in their 30s and 40s. And I can let my dog move smoothly and rapidly around the ring. He and I have won a lot and we have fun competing every weekend.
My advice to everyone with T1D is: Take it seriously, manage your BG levels and your eating, then do in your life pretty much everything you had planned to do before T1D. Take care of yourself and have fun.
Tablets here!
Yes! And the annual nerve conduction study (instead of A1c)!
I was diagnosed in '69 and had to do the test tube thing (so motivating!) but by that time plastic syringes were available.
No, just missed it by a couple years. But I did have one of these, which is similar.
This kid looks like he is testing beer
I got one and started mixing as many chemicals as I could. They tasted awful. I was making artificial flavorings. I was working in the shulphur family. I got close to really nasty yellow chalk. Yumm.
Ok I found a you tube short that makes no sense to me. Has anyone ever had someone mistake your insulin pump for headphones? It’s yet another instance of people saying things that they know nothing about. This so clearly didn’t happen. I’m sure of it. "YOU CUT MY INSULIN PUMP! NOT MY HEADPHONES!" 👿 - Am I the Jerk? #shorts - YouTube
And I always have spare infusion sets because they pull out and get bent and all the rest. It’s kind of reckless to not have spares for important things
Actually…. Yes! I didn’t watch the video, but yes, someone has mistaken my pump for headphones. At an old job, i had to work events (like graduations) and someone who knew about my pump commented about the tubing becoming untucked. Someone else then commented that she had thought that it was headphones plugged into a battery pack or something…which I thought was odd. She then asked the inevitable stupid question “do you have diabetes??”… which I had such a hard time not answering sarcastically. I guess I should be thankful that she didn’t cut the tubing.
I had a very snooty airport security guard in Portugal tell me that my Omnipod PDM (Personal Diabetes Manager) was a cell phone, nothing to do with the pod on my abdomen which I showed him. I was delayed by close to 20 minutes while my fellow travellers had to wait. His attitude was worse than rude.