Not blogging; living

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1

I’ve not been blogging, because of life. So, I know it’s a lame excuse, but with a two-year old son, nearly two-year old, an undiagnosed nerve condition, and a diagnosed chronic disease, I do what I have to do.

My nerve condition has been described as Ataxia, but whether it’s MSA, Parkinson’s, or a one-time occurrence, it’s a problem. It involves loss of balance, poor handwriting, and slurred speech. I will fight it, as I have fought Type 1 Diabetes for over twenty years, but I would be lying if I said it’s not serious. I have thought about more specialists, a specialized clinic, etc., etc. I have had to consider Disability, work-at-home occupations, and long-term unknown developments. I have been bitter, angry at God, even more grateful and greedy for life, and not wanting to waste a second of what I have.

No doubt T1D is tough and challenging, but compared to Ataxia, it is a simple solvable problem. So what do you d when a health issue is not so simple and solvable? Advice?

2

I'm sorry you are having to go through all of this. It must be very frightening. Maybe you should see other specialists to get more opinions. I have no experience or advice to give you but please know that we are here to hear you out.

3

Thanks. I'm going to try and go to a neurology clinic at Vanderbilt.

4

Have you heard about gluten ataxia? Celiac disease (autoimmune) presents with intestinal issues, neurological (e.g. Ataxia) or DH (skin rash). About 10% of type 1’s have celiac disease.