I want opinions from real-world users before I talk to a rep.
I have what I think is a complicated situation and I need direction.
Truly, the only reason I’m considering changing pumps is so that I can test different lengths and angles of cannulas. And maybe the fact that it will work with my Dexcom (I hope, but more on that below).
I’ve been on Omnipod for over 4 years now, and its the first pump I’ve ever used. I love not having tubing. I’m plenty used to being careful at not ripping the thing off. There are still accidents, but such is life as a diabetic. I’ve been using Dexcom for almost the same length of time. I have the G4 with Share, but can’t use the Share since I’m an Android user (someone tell me they’re working on fixing that though? I don’t keep up with the news). And I would love for my husband to be able to see my blood sugar levels with a glance at his phone too. But this is all beside the main point.
I have problems with sites. I was on MDI for ten-ish years and used ONLY my stomach (didn’t really know better and wasn’t taught). So when I place a pod there, absorption rates are pretty low and I struggle with staying in range. I’ve been using the sides of my upper thighs. When I can find a good spot, they work well, but those sites are harder and harder to find. I have three scars from site infections - in the “sweet spot” of my right thigh, upper left stomach, and back of my left arm. So those sites and the tender areas around them are out of commission.
I’m not skinny. I have a solid layer of fat. My doctor doesn’t seem to think the length of needle makes a difference, but is willing to give me whatever length I want. I don’t particularly relish adding to that fat layer, but I don’t truly understand where insulin is best absorbed - not in diabetics in general, but in ME personally.
So right now I’m using the Omnipod for boluses and Tresiba for basal. That helped my absorption rates a bit for a couple months, but they’re getting worse again. I hover in the low 200’s. I can’t pick out patterns. The Dexcom software can’t pick out patterns either, fwiw.
Changed pod at dinner last night, a little after 7 pm. I took 2 units of insulin at 9 pm last night when my pump didn’t suggest I take any, bg was 203 with insulin still on board. At 9:57, my bg was on the RISE at 257 so I took 4 more units (I think only 2 were suggested, but knowing myself, knowing the highs I’ve been having during the night, I bumped it up to 4). I also threw my Dexcom off the bed in a fit of rage. And it still took until 2 am to get down CLOSE to range (which i keep at 70-170 for my rapidly declining sanity). Then it hovered around the 170 mark all night, spiked again after I ate breakfast this morning (two eggs and coffee, same as always - bolused 11 units for that!), bg still 219 at 9 am, so another bolus of 4 units and Dexcom reflects I’m finally trending back down into range. Highish range, not mid-range, or near 100.
Guess what. It’s almost time for lunch! Hahaha! :cries:
I’m sure you can see this is causing me a ton of stress. We’re trying to get pregnant, which is why I want my blood sugars under better control (and they’re truly not TERRIBLE, my a1c is in the upper 6 range but seeing these high numbers day in and day out scares and worries me). The example above is a DAILY thing for me. I can’t tell you the last time I’ve been in range ALL DAY. Maybe last week sometime?? I change pods, I rotate sites, I’ve switched insulins (from Apidra, which seemed to cause more site irritations and was the cause of the three I mentioned above, to Humalog). The only thing that hasn’t changed is the cannula. So here’s the big questions (sorry it took me so long to get to them, thanks for sticking with me on this!):
- Do you think different angles and lengths of cannulas will even make a difference?
- Will tandem allow me to do a test run for a couple weeks so that I can try different cannulas and see if any work better for me?
- Can you still use the t:slim with Dexcom G4 if you have an android device?
- Important but only tangentially related - does anyone know of some dermatological procedure that can break up scar tissue and perhaps help with absorption for us diabetics?
I’d like to hear specifically from people who had issues on Omnipod and switched to t:slim. Its a big expense and a lot of effort to go through for something I’m not even sure will work. I’m not interested in Medtronic at this time, sorry. Nothing against them, but I prefer to stick with Dexcom, so the t:slim seems the way to go. Learning to manage a tube would be a challenge, but if I can get better control, it might be worth it. I’m not super committed to Omnipod - I had a bent cannula the other night, bg in the 400’s, insulin oozing out everywhere, and it didn’t alarm .
Like I said, stressful. For some reason, my job stress seems manageable, the stress of ttc seems manageable, but my blood sugars drive me absolutely bonkers when they don’t respond to insulin (hence the rage throw of my poor Dexcom. Sorry, Dex, it wasn’t your fault!!).
I hope someone out there can help with some advice. I have an endo appointment July 19th and I’d like to have a direction to go in by then. BUT if you think I’m being completely ridiculous, please provide a powerpoint presentation with logically bulleted points and cute cat pictures to ease the way.