Thank you everybody! I will call the integrated diabetes guy. I have read his books and he is amazing. I will provide an update when I do it.
I agree with everyone...the endo's I have seen are not helping me with her doses. They do seem afraid, you are right! Also the problem is because the doctors here (in Montana) get fed up and overworked and move all the time, I never get a satisfactory follow through with any appointments we do have. The regular pediatricians in town wash their hands of anything diabetes-related, unless you are in the hospital in DKA and they can cookbook your treatment until discharge. And any calculations I've found to help me with doses (for example the "1500 rule", etc) don't seem to work for kids who haven't gone through puberty. If someone could just help me with a general guideline for pediatric dosing, that's all I would need! In the end, it's up to me to figure it out, I just want some guidance. She's constantly growing. As we all know, each adjustment takes so long to straighten out. I'm losing patience!
I live in the middle of Montana. The current doctor is in Billings 3 hours away and it took over a year to get an appointment with her. On our visit I got the impression from her that she is overwhelmed as she is doing outreach clinics in many of the rural towns in Montana (and maybe Wyoming too?) I have a feeling she'll be quitting, just a feeling. She moved here from the East Coast probably lured here with the thought that Montana will be a lot more relaxed. True (if she were not the only one for hundreds and hundreds of miles of patients). Also, I emailed her an update to our changes we discussed, and it took a month for her to reply. Nothing against her personally, I just think she has too much on her plate.
Previously we were seeing a great Endo from Salt Lake City. It's an 8 hour drive. He would come to Montana every three months and his advice was spot on! Then, he didn't re-negotiate his contract with the outreach place here in Montana, and so he's gone. It seems silly to drive 2 states away for a doctors appointment like this. It's a lot of driving, time off work and school, and we have to stay in a hotel. It's not like I'm taking her to get treatment for a rare cancer, it's just diabetes advise I want.
So, I will look into these options. Also, Spokane is another bigger city nearby for me to look at. They may have more endo doctors there than Billings, MT.
Will respond with solution when I get one!! Thanks for listening!