1. 10 years 6 months.
2. No. Highest BS level was 510, when I was diagnosed.
3. No, though I have come very close. Lowest has been 44.
4. Eat low carb!!
1. 42 years, 138 days
2. yes @ diagnosis. 529
3. no but did have on the floor twitching event at 28.
4. eat low carb & remember that you are tough enough to handle this
1. 26 years
2. yes with 587 mg/dL. For me it felt like death is just around the corner.
3. never passed out while being awake - even with 28mg/dL or LO on the meter. But more than 24 years ago I did a serious mistake with my dosage calculations. That night I passed from sleep into a seizure and my parents had to give me glucagon. Lession learned.
4. you are in a marathon so better preserve your energy without overpacing. Do not aim for perfect all the time but take it seriously - both highs and lows. Do not beat yourself up for a high number. Just try to make it better the next time.
1.How many years have you had type 1 diabetes? 52 years.
2.Have you ever been in DKA? Yes - when I was 16 years old. I'm 60 now.
What was your highest blood glucose? Around 600 I'm told. This was during childbirth and stress from surgery (1977) sent my bs way, way up. No glucometers at that time.
3.Have you ever passed out from a low? How low were you? Yes. I was on the floor and have no idea how low I was. i woke up by myself but starting eating and didn't check until I could walk upright.
4.Your #1 tip for other diabetics. You CAN do it. Don't let anything stop you!
1. 27 FANTASTIC years. Ha.
2. Nope
3. I've had many meters read "HIGH" (or "Hi" as the case may be, which is kind of funny. Like, "Hi there! You're about to go into a coma!)
4. Nope, thank goodness.
5. You aren't a bad person if you don't have the best control ever. Don't let the guilt monster eat you.
Leata
leatabetes.com
1.How many years have you had type 1 diabetes?
Lol, 3 months
2.Have you ever been in DKA?
What was your highest blood glucose?
I was at 450 when I was diagnosed and I hadn’t even had breakfast yet
3.Have you ever passed out from a low? How low were you?
At first my lantus script was too high, I woke up a lot around 3am heart beating, sweating and blurry, i’m honeymooning still
4.Your #1 tip for other diabetics
I’m so new to this all I stay out of the science and health advice until I know more. However, I love helping people who are newly diagnosed as adults as type 1, I know how shocking and difficult it was for me, so I like letting them know it gets way way better everyday.
1.How many years have you had type 1 diabetes? 7 months
2.Have you ever been in DKA? No
What was your highest blood glucose? 386 at diagnosis
3.Have you ever passed out from a low? How low were you? No, lowest ever was 38 and I didn't even know anything was wrong.
4.Your #1 tip for other diabetics. Excellent control (such as A1Cs in the 5s) can be achieved even if you don't eat "low carb"
1 44-45 years +/-
2 Yes. Surely, but never hospitalized for that reason. Unknown numbers. Any number I've gotten which my machine could measure it was friendly instead, "HI". Sweet, but not helpful. So cannot tell you.
3 Multiple times over four plus decades. The technology did not exist at that time to determine such data readily. If passed out, I'm certainly not wasting my time with testing. If ready to pass out, still not wasting time testing I do not have... not obsessed with data which is superfluous.
4 Our zeal guarantees nothing, be careful with yours, diabetes is never simplistic.
- 6 mos.
- DKA at diagnosis, bg over600.
- No (I don’t want to jinx myself by saying not yet). Like Chuck, in the beginning, my Lantus was too high and I kept waking up with lows. Lowest was 34 I think.
- I don’t know enough or have enough experience to give best tip yet, but so far, find someone who will listen and start educating yourself.
I’m 1 year 9 months, the rest same as pcw…
- 5 yrs
- No
- Never passed out from a low. Lowest low 23
- Find what works best for you – what works best for you may be different from what works for someone else. Take ideas and tips and put them together in a way that makes sense fr you.
1.How many years have you had type 1 diabetes?
In 3 months(December), I will have had Diabetes for 52 years, since the age of 3.
2.Have you ever been in DKA? What was your highest blood glucose?
Yes. Over 1200 mg/dl / 68.0 mmol/l, many eons ago.
3.Have you ever passed out from a low? How low were you?
Yes. 00.0/mmol/l - from an insulin overdose at a hospital when I was about 30.
4.Your #1 tip for other diabetics.
1. Hook up to a DOC that has Good People and Good advise like TuD.
1. Drink your water to flush your kidneys and some toxins and some glucose from your system.
1. Look after your teeth.
1. Rotate every injection. Rotate each infusion set preferrably when it is time to.
1. Test often.
1. 17 yrs
2. No
3. 500+
3. Never
4. You are born again the day you are diagnosed. Your lifestyle has to change, if not diabetes will put an end to you very quickly
Your blood sugar was 0.0 mmol/L and you survived??? I didn't think that was possible. Wow!
1. 33 yrs. About 18 months with a pump.
2. Nope (24 mmol / 440 in US money)
3. Yes...no idea, wasn't concious :P Although lowest I've been when I've got home after a ride was 0.9 (16 in US), but was functional enough to test, feed and correct myself so guess the out cold time was lower than that.
4. Don't let food govern how you live your life as you control it. You are able to eat whatever anyone else can, you just have to think a little about it. Nothing's off limits, just know how it will effect you and the best way to learn that is to try everything and learn how it effects you. And remember, no limits, you can do anything! (last bit is everything really not just food).
1.How many years have you had type 1 diabetes?
almost 14 years
2.Have you ever been in DKA?
yup, at diagnosis.
What was your highest blood glucose?
No idea. I think my mom said somewhere in the 800s. Since then, probably in the 500s (I had a few rough mornings in college...me + chinese food = terrible sugars for days.
3.Have you ever passed out from a low? How low were you?
Nope. I've been as low as 25 and not passed out.
4.Your #1 tip for other diabetics
Test test test! :P Seriously. And argue when they try to tell you no. And if they still tell you no, find an endo who will fight for you. And then marry into money so they can buy your test strips out of pocket :) kidding :)
Yes indeed, a person can be brought back IF someone shows up in a timely fashion to help them. It has been done with others also. People's hearts get restarted everyday. I did have some
brain damage but did eventually get most of my lost memories back and how to maneauver properly again. Those events happened many years ago. Nothing so extreme since except for once.
1-I was diagnosed last May, but believe I had this brewing a long time from various symptoms on and off and for various reasons it finally took over.
2- Yes, last May at my diagnosis- severe acidosis with complications, fortunately I survived it all. I hope never to go through dka again. My highest recorded was 363 at the er.
3- I have felt close 2-3x but juice/glucose drinks saved me.
4- I'm new at this so I'm not sure if I have any tips except to take it one day at a time and don't beat yourself up when the numbers go up or down too much, just move on to improving the next one. Enjoy something every day, take a break every day.
I should add that by last May I meant May 2012, got confused. So it has been about 1.5 years now on insulin and a lo carb diet etc.
1. 39
2. no, 769
3. yes, 18
4. Do not get it