Type Weird is a term I coined many, many years ago, when it became apparent that I did not fit into the classic Type 2 box, and there was no antibody testing for Type 1.
I had what would be a slow onset for Type 1, but a fast onset for Type 2. The first hints that I might be developing diabetes came in 1991 and 1992, but I was not formally diagnosed until Aug. 1993, and I was sent to an endo in Dec. 1993, who put me on Glucotrol, which did absolutely nothing for me at all, and in May 1994, I asked to go on insulin, which did wonders for me. At the time, my TDD was in the 20’s, not an extremely high dose. Although it took some unpleasant experimentation to get the right combination of insulins, and I suffered through the old R + NPH regimen, I finally got onto the pump in 1999, and it’s been pretty smooth sailing since then, although my weight has gone down, and my TDD has gone up, which seems to indicate to me that my beta cell function is continuing to deteriorate, if it’s there at all. And I was never obese to start with.
The reason I bring up this thread is that I’m discovering that I’m NOT alone. Many of those in the Thin Type 2 group seem to fall into this NON-classic Type 2 category, simply because many of them have been tested for antibodies and DON’T have them (I’ve never been tested – DID test positive for Hashimoto’s, though). And many of them DO have significant insulin production, but not enough to maintain normal BGs without help.
The problem is that docs see them as Type 2, and then proceed to treat them as if they were classic Type 2’s, which they’re not, and automatically use oral meds which may not really be what they need. It’s like they’re flying under the radar, and the medical profession will not acknowledge their existence.
They can’t actually be classed under the LADA category, because of the lack of antibodies, yet their treatment needs may be more similar to LADA than to classic Type 2.
I’m wondering how many people would fit into this category, if it existed, and whether they could join forces with the LADAs simply in order to get appropriate treatment. I know one member of this group put HIMSELF on insulin because he simply could not get the cooperation of his doctor. It’s a shame when a person has to go that far. And I don’t think he’s alone, either.
What do YOU think? Do you have any stories or suggestions that really should be shared with the world at large and with the medical profession?