Hello, I’m Dave.
I’ve been an occasional reader of some of these posts for a short while now. Not sure I can contribute anything of value, but I may have some questions from time to time that some others may be able to help with.
About me personally: I was diagnosed with T1D in 1977 at age 24. Not what my wife and I were hoping for at the time of our first wedding anniversary. But, then again, there is no good time to be diagnosed with a chronic ailment. We were given a fair amount of misinformation by the well meaning nuns at the hospital where I was initially treated. My wife was told I probably had 20 good years of life. We were told any children we might have had a 50/50 chance of developing the same disease. Our personal research painted a brighter picture. Thankfully, 41-1/2 years later, all three of our children and nine grandchildren are healthy! And I’m doing pretty fair myself. My eyes are good (for a 66 year old), my kidneys still work, no diabetic neuropathy. I’ve made an effort to take care of myself as best I can.
I spent most of my life working in the building trades as a carpenter. I spent the last few years as a building maintenance supervisor. Given the type of work I’ve done, I couldn’t imagine myself wearing an insulin pump with tubing. About six years ago I decided to give Omnipod a try and found it to be a great alternative to multiple daily injections or a pump with tubing. But now, as of last month, I’ve decided to retire and have to deal with Medicare. Yes, my medicare part D will now cover Omnipods, but at tier level 4. I can’t afford the co-pay! It looks like I’ll have to go to a conventional pump with tubing. I HATE the thought of being tethered to tubing! In addition to that, my Dexcom is out of warranty and needs to be replaced. I’ve been making phone calls and sending emails to my Dr., his nurse, pump manufacturers, CGM distributors, and pharmacies, not to mention multiple calls and queries to Medicare! The stress is making me want to end my retirement and go back to work!
So, here’s my question: Does anyone have any advice for wading through Medicare guidelines and jumping through the proper hoops?