I'm Amy - 30 something year old mom to four wonderful kids. We are a homeschooling family that lives on a small farm in Pennsylvania. I grew up in NYC, though this lifestyle suits me fine. Life was pretty "normal" for us - and then I noticed that Julia seemed tired. At first, I thought it was some sort of cold - and didn't think too much of it. A few days later, we headed to the pediatrician because she wasn't getting better. The pediatrician did a quick urine test and Julia's sugar level was over 1000.
We hopped into the car and drove to the Children's Hospital of Philadelphia. The hospital was about 2 hours away from home, but the pediatrician assured us we would be well taken care of. That was one of the scariest days I've ever had. When we arrived at CHOP, Julia was diagnosed with DKA and her condition was deteriorating quickly. Once she was stabilized, we were transferred to a room and were able to rest up a bit. During our stay, we received three wonderful days of educational classes - complete with a final exam. It was very reassuring to know that we weren't being thrown into this without a team to help us.
We were in yesterday for a followup apointment and received the news that Julia tested positive for Celiac Disease and Thyroid Disease. We have an appointment for a biopsy to confirm the Celiac and will follow up with everything else at our next appointment.
We are all adjusting to the new "normal" now. :) Sure, life is different - and at times I get hit with a sadness I've never experienced before, but I know it's all going to be okay.
My other children are Morgan and Ben, Julia's brothers - ages 13 and 11 - and Emily, age 9.
I'm feeling so very thankful for such a wonderful place here - and am already feeling welcome. Looking forward to getting to know everyone better.
Welcome Amy! I’m glad you’re here! Julia is so blessed to have you as a mom! I was diagnosed at 4 (23 years ago!) and reading your discussion reminds me sooooo much of my mommy! Stay positive and informed for Julia!
Welcome to Tudiabetes, Amy!
I was diagnosed at age 11, and have now had Type 1 for 17 years. It can take awhile to adjust to the new “normal”, but I’m confident you guys will be OK. It sounds like you have a great team of doctors/educators to work with, too! I agree with Sophie J., keeping yourself informed and positive is a huge key in dealing with everything that comes with diabetes. This group is a great help, too, as it’s nice to know there are others out there who understand what you’re going through to some extent. Welcome, and good luck in the coming adjustment period! Please reach out in this community if you have questions or need support, everyone is pretty great about helping out!
Hi Amy. I am a type 2 home schooling Dad of 7 .I have been struggling myself with diabetes issues,mid life crisis etc.I am not looking for sympathy just saying, your not alone.Just take it one step /one day at a time.I understand it must be so overwhelming and scary at times,for you and your husband and especially Julia.One thing I know is that you will be OK.Homeschoolers are used to adversity so I am sure you will be strong.I will pray for your family.This is the most excellant (sounds like Wayne’s World) web site I have found.I have learned so much and have made some great friends.Remember we are all in the same boat together,to help and support each other.Take care Bobby
Welcome Amy… and Julia…! glad to have you on board…
anyways, i can feel your worries, but dont worry, eveything will be alright… it may take some time to get adjusted to all of these but you should be fine, and we are here… dont hesitate to ask…
Hows Julia? hope shes ok… is she on pump? or shots?.. I was diagnosed when I was 8 too… but so far so good… i just started pumping 2 years ago… and im pretty happy with it…
