Ken, Thank you so much. I just had my 12-year-old T1D son read your message. This was truly a inspirational message for him.
Iām sorry you feel like this and I totally get it. Itās constant! Neverending. I find it so exhausting and I think itās part of the reason I am so easily overwhelmed.
I donāt think it is bad that we prioritize ourselves over our lovers. When you fly in a plane they give you a lecture that if the plane goes down and the oxygen masks drop you should put yours on first before taking care of your child. If you donāt take care of yourself then you may well not be there for your GF or spouse. If they really love you they will understand and appreciate your priorities.
@Joan10 Did you know that itās pretty common to have co-occuring anxiety when living with diabetes? Iāve had T1D since I was 5 (Iām 31 now) and I still get anxious on days when my bgs are not doing what I expect them to do or when my routine is changed drastically and I have to deal with all the diabetes stuff when anyone else would just go with the flow. I have a really good friend who is a Diabetes Coach and she works with PWDs (people with diabetes) who are finding it hard to deal with the anxiety that diabetes can create. Please feel free to email me at asha.brown@wearediabetes.org and Iāll share her contact info with you!
Hi Joan, Im with you. It sucks and its for life! Ive had diabetes for 45 years after having my pancreas removed. Now I have cancer from that operation, which is spreading slowly. I feel like Im being consumed slowly and have no say over whats happening. I use the smallest needles (5) which seem to help get over the fear of stabbing yourself. I still hesitate sometimes, but I know it has to be done. Your not alone, I guess I have just had to accept it and dont think about it anymore. Talking to a professional has given me some coping strategies and has helped a lot. I first thought āIm not crazy, I dont need professional help!ā but its like having somone to bounce ideas off without thinking your weird, so I thoroughly recommend it. I hate hospitals and doctors and thats natural considering the amount of time we spend visiting them, so hang in there. You are doing so wellā¦
Wow. that sounds incredibly hard to go through. Thank you for your words of encouragement and support even though you are struggling. You hang in there too. This disease is enough of a ā ā ā ā ā and having cancer on top of it. I canāt even fathom.
It doesnt matter what you have to deal with. you just do it right? Hope you are ok xx
thankās for sharing . no one deserves diabetes. I to am trying to cope with my dx. giving up a lot of food you
love and worrying about bg numbers is a lot. your not alone . but someday their might be a cure. stem cells
look promising. watching t.v. is tough when most ads. are about food we canāt eat. and showās of people eating
and drinking without a care is tough. but try to enjoy the things you can do. and there is people worse off.
talked with a lot of people about this disease most have no clue what their talking about. most said just lose some weight and you will be fine. I lost 30lbs. still have high numbers. so that wasnāt it. we should all pray
for a cure . their is some promising research . hang in their joan thanks for being honest.
Thanks.yeah thatās true. You just deal with it. No choice, right? You too. I am feeling a bit better for now. Just going through the ādiabetes burnoutā phase I guess. Thank you
Haha so true that a lot of people donāt have a clue. Plus we are all so different even though we have the same disease and they donāt get that. Iād of course be thrilled with a cure but realistically I just really want a better way to deal with this ā ā ā ā . Thanks. Itās nice to have people to talk to about this